My doc pretty much let me do the cutting down. He gave me a months worth (10 pathces) of the 50s and I only used 5 of them before starting the 25s. Tonight my plan is to remove the 25 (I still have the 5 50s and 6 more of the 25s) my Dr trusts me as far as knowing my pain scale for cutting down. I had a few of the 100 dilaudid left from my surgery (yeah 100 and still some left a lil over 2 months later...I have a high pain tolerance). I had to take the dilaudid 2 times today but for my joints not my belly. My GI called i 3 months worth of entocort and wants me to hold off if I can. My joints are more commonly affected around my menstrual cycle, since I got it yesterday I was hoping the pain would lessen but no such luck yet. Tylenol was my friend to fall asleep last night after my husband left for work today (4:30 am) I was unable to fall back to sleep no matter how I was positioned I took dilauded which barely dented the pain. On top of all this my family stress is bad right now with health of other members. In my past threads about
stress Imentioned what was going on.
Sad to say that the pneumonia Tx is not working for my garndmother and she is now having hospice come in. They dont think she will last more than 2 weeks, and for the first time today I think my papa finally realized how grave her illness is. I dont know if he didnt understand or if he was in denial or a little of both, they have been married 58 years. We assumed she had alzheimers for a while but no matter what we did she wouldnt see a dr about
it not long after I was discharged from the hospital her health dropped fast. When I was in the hospital back in Feb and Mar she made it to see me very few days, when I was first Dx in 1987 she had taken early retirement and spent every day with me when I was in the hospital for 6 weeks. When I was in for my reversal surgery they came to see me everyday, I wonder if somewhere in her she unconsciously knew this was coming to her.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987