the chest tightness and SOB has happened to me all 3 times I have had remicade and they don't seem to bothered by that. They just stop it, infuse benedryl, and then restart at like 30ml/hr. My reaction usually occurs about 5 minutes-15 minutes after they start infusing.
They started it at 60ml/hr last time and the SOB and chest tightness wasn't as bad as when they ran it at like 100 the time before. After they restarted it, they had it at 30, and then 50 at the most for the rest. It seems to take me about 7 hours with all that.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP
Every tool is a weapon if you hold it right ~ Ani Difranco