Dr. called me fat(128lbs.)then gave me more Prednisone!

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Regular Member

Date Joined Mar 2006
Total Posts : 30
   Posted 8/23/2007 1:12 PM (GMT -7)   
Ok, so I am frustrated!!  I went to the doctor because my abdomen was swollen hot and very painful (Crohn's is in upper intestine).  I also had swollen painful joints.  She checked my stomache and said yes your very destinded and swollen...but some of it is fat too.  Well, I can't remember the exact words...but after that who cares!  I am 5'4 and 128, yes not rail thin, but come on.  Why would she say that to me knowing she is going to turn around and give me Prednisone for my joints and Crohns?  Then she proceeded to tell me about portion controll.  Does she know that during a flair I can hardly eat at all except maybe chicken broth and bland food?
I left wanting to cry.  I needed something for pain too but didn't even bother to ask because next thing she might tell me I am a drug seeker or something. sad
SLE, Crohns

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 8/23/2007 1:31 PM (GMT -7)   
We all have fat in/on our abdomens, she may have just been stating a fact not realizing your feelings about it, and having to take prednisone on top of it. Even when I was 115 lbs. and 5'5" (a long time ago, lol), my surgeon told me to go on a diet before surgery because my belly fat would make it harder to heal. I was very upset at the time, but he turned out to be one of my favorite doctors ever.

That said, the portion control comments were over the limit.  She "should" understand what you're going through, if not, maybe she's not the right doctor for you. 

25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Regular Member

Date Joined Mar 2006
Total Posts : 30
   Posted 8/23/2007 1:46 PM (GMT -7)   

yes, I guess that I am being sensitive, just felt that she should, like you said, be a little more understanding that when you are feeling like you are going to die you don't need to hear about portion control.  I thought I would get over it faster but I'm still mad. Every time I go to eat something I feel like I don't know what to choose because I love vegetables but when I hurt like this it really only feels good to eat mashed potatoes or something.....and then, I guess I am back to  being a fatty according to her.

Did I mention, she in a Nurse Practiotioner, I guess I shouldn't call her Doctor.  Do I sound bitter or what??? :-)

SLE, Crohns

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/23/2007 6:40 PM (GMT -7)   
I would try to get in and see your family doc for the pain meds. And I would not want to see that want to be doctor again. How rude!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined May 2003
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   Posted 8/23/2007 8:16 PM (GMT -7)   
The fact is that prednisone makes us all want to eat (which is a good thing when we've dropped too much weight), and I know that when I'm on pred, I just eat all day long! ;-) So the portion control is definitely an issue. The problem is that the effects of prednisone seem nearly impossible to control!

Veteran Member

Date Joined Mar 2006
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   Posted 8/23/2007 9:28 PM (GMT -7)   
128 is far from being fat, goodness that's rude, and the last thing you want to hear when your suffering in pain. I don't think you're being overly sensitive at all.
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 2:52 AM (GMT -7)   
Hi meg I don't think that is fat at all and I think we need some fat to get us threw those days when we cain't eat .Hope your cooking those veggies good raw or not well cooked can kill me .Don't let her get you into eating things that will hurt you. The pred. can sure get the appetite going but for me that was better then pencil thin when I was 124 I was very thin and not well at all I needed that extra weight I had, because I had lost so much when I was really sick.So hope your cheeered up and hope you feel better soon.lol gail

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 2:58 AM (GMT -7)   
Hi Meg That doesn't sound fat to me I needed the extra weight I had when I really got sick I had lost a pile of it .Don't let her get you down the pred. can do that.Hope your cooking those veggies real good raw or not well cooked kills me and turnip. Hope you fel better soon. lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 8/24/2007 3:48 AM (GMT -7)   
Hi I think that was very ruid of your doctor to say that. Because pred. has bad side effects and puts
on weight on people. I would consider finding a new doctor with better manners.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 8/24/2007 4:40 AM (GMT -7)   
Doctor probably shouldn't have said that but I actually took the first part a little differently. Maybe she was just saying that some of what she was feeling was tissue and not bloat. Not saying that YOU are fat. We all have fat on us, she was just saying that was accounting for some of what she was feeling? Now, that comment on portion control would have pissed me off.

Sorry you have to go on prednisone. 5'-4/128 is NOT fat.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Currently taking Entocort 6 mg/day (tapering down), Asacol, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Gastritis is back - constant, gnawing hunger. Yech.

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 8/24/2007 5:11 AM (GMT -7)   
I'd hate to think what she'd say of me at 5'1" and 135! I at first thought she meant that she was feeling the omentum fat (which you couldn't have much at that weight) but with the portion control comment, she must have meant it how you took it. Sounds like SHE has a problem. My GI once told me when I complained about my weight climbing up to a "whopping" 118 (what I'd give to get back to that!) while on pred, that he'd rather me have some extra weight on me for when I flare and start dropping it fast. I commented about my current weight recently and he just said, "you're not fat". So, if I"M not fat, then YOU can't be fat!

Seriously, you're not even close to being overweight by any standard weight chart.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Regular Member

Date Joined Jun 2007
Total Posts : 340
   Posted 8/24/2007 9:40 AM (GMT -7)   
when I was 128 people told me I looked too thin and I am only 5'1". Maybe she was talking about portion control for when the prednisone makes you hungry. We all have to have SOME fat.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 8/24/2007 10:09 AM (GMT -7)   
If you took offense and it hurt your feelings and left you unhappy w/this doctor she should be made aware of it. She may NOT have meant to be offensive nor to hurt your feelings but she did.

MAYBE she brought up portion control BECAUSE of starting you on pred but what she meant and how it felt to you indicates she needs to be a bit more sensitive to how YOU are feeling. By all means just tell her that her comments were hurtful and offensive to you. You are in pain, not doing well and may be more sensitive than usual BUT she must have other patients who are also in pain, not doing well and they are going to be sensitive too.

For some reason, my gastro's NP always goes on the defensive most any comment I make whilst my gastro knows me well and we don't have that problem. She speaks her mind and I speak mine and we pretty much mutually respect each other. While her NP may be a good addition to the business end of running of the office, frankly, I find her a detriment to the relationship between my gastro and me. I sometimes wonder if I'm not speaking English to this NP or something because she never seems to "get" what I am saying or trying to say before she cuts in w/some defensive remark.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Regular Member

Date Joined Mar 2006
Total Posts : 30
   Posted 8/24/2007 10:44 AM (GMT -7)   

  I can't thank all of you enough for your very kind replies.  I have rarely posted a topic here but check in often.  What a great support team you all are!  Thank you sooo much, I really needed it! :-)

Do I understand correctly that the more I cook the veggies the more they cause the pain?  I am very confused about this, I never feel like I digesting anything properly and I felt it was worse when raw...but I just don't know anymore because everything hurts!  Especially as some of you have said in the past seaweed from sushi and the dreaded cabbage both of which I love to eat but can make me ill for days.


SLE, Crohns

Veteran Member

Date Joined Aug 2007
Total Posts : 2198
   Posted 8/24/2007 10:59 AM (GMT -7)   
Cooking fruits and vegetables breaks down the tough fiber matrix and should make them easier to digest. I was confused by gachrons' post, too.
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 8/24/2007 1:59 PM (GMT -7)   

Heck, I am Fat and not one Dr I have actually uses the word fat with me. They all have better bedside manner than that.

I also... think she may have not meant to hurt your feelings but since she did maybe you can see someone else other than her next time. She does not have any manners. She could have phrased it differently. She may have been just trying to say that your tummy was not all bloated but she could have said there is some tissue there or something less harsh.

Plus if you are on pred it would make you more emotional. It sure does make me emotional.




Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also taking Multivitamins, B Vitamis, Biotin, and Extra Folic Acid. (might add more when I do more research)

Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 8/24/2007 2:11 PM (GMT -7)   
wow if you are fat then I am obese!!! I weigh 138 and am 5'5.....granted I had a baby 7mths ago but I still havent lost the weight and havent really tried too hard cuz I get sick so dang much!!

my stomach constantly looks huge and distended...she should keep her mouth shut!!!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 3:08 PM (GMT -7)   
Hi Meg I meant that you should cook them untill very soft. I don't eat cabbage either or haven't for awhile.Low roughage are foods that are very easy to chew and digest.Same as white bread is easier to digest .Minced meats are too. I was worried that you might start eating salads or something like raw carrots that might hurt you if you do not digest them well.I get pain if I don't watch my diet so I am being very kind to myself. lol gail

Veteran Member

Date Joined May 2003
Total Posts : 3103
   Posted 8/24/2007 7:40 PM (GMT -7)   
I've gotta be absolutely disgusting. I'm shorter than most of you -- 5'2" -- and heavier, too -- 136 pounds.

she may have mentioned portion control, also, as a way to not overload your gut. I know, especially when I was on pred, I tried to have no more than a fist sized portion of something at a time. The next portion might be a half hour later, but it kept me taking breaks so I wasn't taking in food like a muzzle loader. And eating those smaller portions more frequently did seem to help. I kinda broke out of that at dinner time, and would try to eat a little more, but I knew that while I was on pred, I was never REALLY gonna feel full, too.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore

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