Calling all Stoner crohnies!

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Date Joined Oct 2004
Total Posts : 3932
   Posted 8/23/2007 5:23 PM (GMT -7)   
         Ok, all my fellow kidneystone suffers, does anyone know/recall that website on stones that supposedly has all the best information on them & their treatment. Wbisme wrote it once, but I've lost the address. I really want to go over & have a look.
      As for the rset of you who are turning to read this post because of the title making you think it was something else. nono nono Shame on you! LOL.
     tongue tongue tongue
     T minus 5 days until purgatory..

Regular Member

Date Joined Jul 2006
Total Posts : 77
   Posted 8/23/2007 5:46 PM (GMT -7)   
25 years old..Just had my second baby(a son)born Feb. 26th..using 75mgs of Imuran...He is perfect in everyway: ).Been on the BIGGEST Crohns "rollercoaster"..been down to 88lbs (5'7) about 2yrs ago..very sick..Been on Pred, Pentasa, Entocort, Cortifoam enemas, Imuran, and flagyl and cipro for anal fistula. Currently only taking Remicade..and it has been my miracle* drug!
*  So far..and I do have my bad days: )

Veteran Member

Date Joined Jan 2005
Total Posts : 1507
   Posted 8/23/2007 6:25 PM (GMT -7)   
Matthew, the best source I know of is the Yahoo group on kidney stones, appropriately named kidney-stones-group, in which a urologist, Dr. Leslie, regularly participates. He also has a web site at He co-wrote a book, mentioned on the web site, which is rather poorly written but contains useful information on stones.

What's special about Dr. Leslie is that he understands that patients experience a variety of stone types for a variety of reasons. So, his approach targets the problem more specifically than that of some, less knowledgeable physicians. That said, he's not the world's greatest expert or anything of that sort. He's merely a good physician who knows his stuff and graciously shares his time with patients. The great majority of urologists I've met know considerably less about stone prevention than does Dr. Leslie.

Crohn's Disease, Diabetes T2, Chronic Kidney Disease, Chronic Pain, Kidney Stones, Ureteral Strictures, Reactive Arthritis, hyperuricemia, Secondary hyperparathyroidism, Vitamin D malabsorption
Imuran, Prinivil, Zocor, Prandin, Alka Seltzer Gold (for alkalinization), Low-dose Aspirin, Allopurinol, Oxycodone, Calcitriol, Amitriptylene

Regular Member

Date Joined Aug 2005
Total Posts : 244
   Posted 8/23/2007 10:00 PM (GMT -7)   
shame on me tongue
"If thou wilt be observant and vigilant, thou wilt see at every moment the response to thy action. Be observant if thou wouldst have a pure heart, for something is born to thee in consequence of every action." -Rumi-
CD for 15 years diagnosed at age 11(i get the crohns cycle)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 2:38 AM (GMT -7)   
Hi Matthew Has there been any thing in your diet that might contribute to them? Not sure it does but might be worth looking into.No stoner here just straight when I 'am not having joint or muscle pain then i'am a little gail

Regular Member

Date Joined Oct 2006
Total Posts : 367
   Posted 8/24/2007 6:58 AM (GMT -7)   
    confused Dude!!??
     I thought I was going to get some really good stuff! yeah

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 8/24/2007 6:43 PM (GMT -7)   
I don't know if that is the site Wbisme mentioned or not. Anyway, what is the address?


Diet not so much, oxalate stone formation in us crohnies usually is from improper absorption of minerals, esp. calcium in the small intestine.

Regular Member

Date Joined Feb 2007
Total Posts : 74
   Posted 8/25/2007 10:42 AM (GMT -7)   
Its Medicinal here in Canada Nothin to be ashamed of LOL

That which does not kill us makes us stronger.
Friedrich Nietzsche

Veteran Member

Date Joined Oct 2006
Total Posts : 2079
   Posted 8/25/2007 1:38 PM (GMT -7)   
Actually, I thought of the Rolling Stones. I'm illicit drug terminology illiterate. Then I thought of gallstones, which I have firsthand knowledge. But my husband is the "kidneystoner" of the family. He takes allopurinol for the uric acid. He also has a history of gout which is kept in check by this drug since it's the same stuff that crystalizes in the joints.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Regular Member

Date Joined Jan 2006
Total Posts : 135
   Posted 8/25/2007 3:11 PM (GMT -7)   
man you got my attention.  almost fell off of my chair.  Not good it would have been a lost time accident at work.

Veteran Member

Date Joined Jan 2003
Total Posts : 1928
   Posted 8/26/2007 6:15 AM (GMT -7)   
Man, I'm guilty. You got my attention :-P Then I was disappointed when it was about kidney stones....
"Only the meek get pinched...the bold survive." 

Olive J
Regular Member

Date Joined May 2007
Total Posts : 83
   Posted 8/26/2007 10:16 AM (GMT -7)   
LOL, I also misunderstood the message!!!VIEW IMAGE

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 8/26/2007 2:02 PM (GMT -7)   
Hahaha, Olive J tongue
From Ingrid

Regular Member

Date Joined Jun 2004
Total Posts : 226
   Posted 8/26/2007 3:07 PM (GMT -7)   
"here here", "Here here"
oh wait eyes scool nono

Veteran Member

Date Joined Mar 2003
Total Posts : 607
   Posted 8/26/2007 5:27 PM (GMT -7)   
Shame on me! I had to look!!!! I got a good laugh though. Thanks!

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 8/26/2007 6:21 PM (GMT -7)   



     nono What a shamless bunch, the lot of you! LOL.

   Well, just 36 hours to go, until the last stone is removed. I hope this Urocrit stuff I'm taking is effective. 5 straight summers of kidneystone attacks is enough for several lifetimes. I wouldn't wish this on Bin Laden if he were right in front of me. No one should suffer this kind of misery.




Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 8/28/2007 6:22 AM (GMT -7)   
Just hoping you feel better soon!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!

Veteran Member

Date Joined Oct 2006
Total Posts : 2079
   Posted 8/28/2007 6:56 AM (GMT -7)   
You have my sympathy. And my husband's.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

New Member

Date Joined Aug 2007
Total Posts : 9
   Posted 8/28/2007 3:46 PM (GMT -7)   
shame is a wasted emotion....let's all enjoy heaven on earth!

God "gave us the seed-bearing herbs to use" - quoted from some part in the bible, per Bob Marley and Cypress Hill


as for kidney stones i heard those are extremely painful, good luck with that battle.

as for medicinal use, i did not know it is legal in Canada? is that countrywide or just in certain areas?

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 8/31/2007 10:26 PM (GMT -7)   
Unfortunately,,, I knew just what you meant. Sorry I dont know the site you seek, but if it makes you feel ,, not so all alone,,I have just passed my 4th one in two months. I am averaging one per month this year,,,two so far this month and last. Its ok,,,I'm paving my drive...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 9/1/2007 11:21 AM (GMT -7)   
Hey James,

The new garden outside this house is a rock garden. Is this another of Life's little ironies? LOL.

Keep that up & you will soon surpass me & be the Kidneystone King (AKA The King of Pain. Sting, if you only knew what I know!)

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 9/1/2007 12:59 PM (GMT -7)   
Shame on me!!!!!!lololololol
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

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