Hi Not sure what Tysabri is but not liking the part where you said some people died. Hopefully your getting the Hum. will work out great for you .Glad your feeling so comfortable with your life of having choices and future help. lol gail
Tysabri is a drug that came out several years ago and showed great results and even more promise in fighting Crohns disease. It also was tested for MS and did even better for that group. Out of about 4,000 or 5,000 people being tested...4 or 5 developed a reaction that is believed to have caused the release of the JC virus in them which led to progressive multifocal leukoencephalopathy. I have heard that they all died...I have also read where all but one died and the one that lived is quadriplegic....either way not great news. Only one of these terrible reactions was linked to the Crohns study.
The fact is that the MS community has never been offered a drug that worked so well. Regardless of the deaths they fought hard and got the drug re-released (it had been fully released for MS even while it was still in trials for CD) and now under very close supervision it is available for the treatment of MS.
I was in the CD trial for over a year before I went open label testing and got the real deal...I was given the placebo for just over a year. The change was nothing short of a miracle....I gained almost 100 lbs in a year. I could eat and drink anything. I could go anywhere wth full confidence...the only negative was that it wore off after about 28 days and the infusion cycle usually took 30 days. When they pulled the drug of the market and canceled the testing ...I was crushed...
They tested me every way you can imagine for any kind of sign of the progressive multifocal leukoencephalopathy...including spinal taps. Nothing showed up, but my CD went active and my health went south and has been going that way for the last 30 months.
I will ty the Humira, but it is great to know that the tysabri will be there if and when I need it