Well I told them I had no medical records cuz I couldnt remember the doc in the other state and that the last doc "thought" I had crohns. Although I really know I was dx with it but I need this insurance...I need to GET BETTER. I am in a bad position.
So here's the outcome: he wouldnt start me on jack until he scopes me. So the down side is I live with pain for 2 more weeks till colonscopy. I have a small bowel followthru scheduled on Tuesday morning. They took some extensive bloodwork including a promthesis IBD to determine IBD.
Funny thing was the discussion on bone pain. He doesn't think my bone pain is from the IBD. I was like "what?????" I mean I have always thought they were related but he said normally Crohns causes spinal pain and pain down into legs ankles and toes.
My bone pain is in my right knee, right elbow, wrists,fingers but more so in my clavicle/shoulderblades, ribs and back...or lets not forget my jaw!
So he said he cant really help with that
referred me out to a rheumy who he said will probably take months to get in to.
BAD PART...Im sad almost crying
cuz I dont want to have to wait months to feel better! I pop Ibprofin and nsaids like candy...which he also said I need to start taking prilosec/pepcid when I do that. I just want someone to give me some relief but its a waiting game.
I waited to get insur, then waited for this appt, then I wait for colonscopy, and rheumy who knows how long that will take. Sorry I know everything cant be instanaeous (sp) but last time I flared...I got instant relief. I guess I have to be dying for someone to care that Ive been in pain for over 6mths.
Well enuf complaining...Im thanking God for what I do have right now!
Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength
Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!