Debbie downer....

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New Member

Date Joined Aug 2007
Total Posts : 3
   Posted 8/24/2007 8:04 AM (GMT -7)   
So I have been recently diagnosed with crohn's at 19, but have been suffering since I was about 17.  Lately, I've just been feeling really down, because of the disease.  I would love to wake up one day and go a whole day without feeling symptoms.  My family/friends/boyfriend are really supportive, but when it gets right down to it they don't know what's like to feel that pain and on top of the pain all the lovely things that accompay it.  I really can't believe how much I use to take my health my for granted.  I guess part of me is terrified too.  I mean I'm only 19.  What is this disease going to do to my body in 10, 20, 30 years??  My uncle, who also suffers from Chrohn's, has been hospitalized twice and the last time he was he went down to like 90 lbs and was in the hospital for a month.  I know I have to accept this disease as part of me, but lately have been clinging to my life prior to CD.  Just had to get this off of my chest.  And now I feel a little better. 

Regular Member

Date Joined Jun 2007
Total Posts : 155
   Posted 8/24/2007 8:19 AM (GMT -7)   
Well you have definately come to the right place. We all vent in here as much as we need to. I am sorry you are feeling so bad. It sucks! I'm 25 and have been suffering from this for probably the last 6-7 years even though I was not diagnosed until June of this year. No one will ever understand you unless they have this disease and have symptoms like you. It's hard to tell everyone all the time that you just don't feel right and you just feel sick. There are good days and bad days. What is hardest for me to adjust to is knowing that I can't do something because it will make me feel worse in the future even though I feel fine at that moment. Like going out to dinner and eating cheese fries...I might want them really bad now but I know that an hour after I eat them I will be curled up in a ball in pain. Telling myself "No" is something I am not quite used to just yet. Don't think badly about 10-20 years down the road...just think that if you can get this under control now...the next 10-20 years might be great. My aunt(Thank God) has been in remission for 20 years! Everyone's situation is Aunt had 3 feet of her small intestine removed but yet she never had to deal with Fistulas or Fissures, I don't have any problems with blockage but I have 1 fistula and 2 fissures...go figure! I hope you get well soon!
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 8/24/2007 8:34 AM (GMT -7)   
Well, remember that you had symptoms the last 2 years because you were untreated. Now that you've been diagnosed it means you can get your disease under control, there's no reason for you to continue feeling the way you have been, that's what treatment is for. Get yourself to a good GI, get the proper treatment, and while it may take a little time, you will feel better, and possibly for years at a time. There is a light at the end of the tunnel.
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 8/24/2007 11:43 AM (GMT -7)   
I'm sorry to hear about you being recently diagnosed. I too have been recently diagnosed and feel EXACTLY like you do. Family and friends are trying to be supportive but sometimes they say things that piss me off like: "That's what you get for going to school and working you overworked yourself." Or "why don't you eat more--you are you supposed to keep your strength? (not knowing that eating makes the pain WORSE)" Or "congratulations on the weightloss" (never mind that you lost 20# in 3 weeks and you're scared cause you don't know when it's going to stop) Kindda feels like a bad dream and then every day something "new" comes up--now I'm TIRED... can't find anything on the internet to help with "tiredness". I am 35 so I REALLY took my health for granted because I was like hey, I eat right, I excercise 5-6x week, I don't smoke or drink, I am invincible. It's kindda like, I NEVER in my life thought about going to the bathroom or not going, or making sure what I ate didn't kill me later that day. I never thought about people that lived with chronic pain every day or with things that are incurable. You feel bad for them but you could never NEVER really know what they are going through. This site is awesome. Thank you judyk89 and decrapster for bringing some positive things during our up and down times. =0) Hang in there. The veterans said there is hope for us. That maybe in 10-30 years the drugs will be better. We have to keep that hope. Take care.
Newbie - Diagnosed: 08/03/07
Meds Asacol 3x day, prednisone done of taper tomorrow

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 4:50 PM (GMT -7)   
Hi Happy Welcome to HW I think we all mourn our old self but when that is done we look for info and support from those that are coping with this too. I have found some peace here and think of this as my second home where I belong. Low roughage diet can help I got my info from a dietician and it has helped.So what meds has the Dr. put you on and are they helping? Other people we know can sometimes try to be helpful and I know it can get on the nerves but when things got managed better then I could cope with that part better.Some people have the disease worst then others some are mild,moderate ,or severe.So some have fistula's and some don't don't judge your CD by your Uncle's.I am sure you will be alright and have the strenth to cope with this we are here for gail
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