Debbie downer....

Well you have definately come to the right place. We all vent in here as much as we need to. I am sorry you are feeling so bad. It sucks! I'm 25 and have been suffering from this for probably the last 6-7 years even though I was not diagnosed until June of this year. No one will ever understand you unless they have this disease and have symptoms like you. It's hard to tell everyone all the time that you just don't feel right and you just feel sick. There are good days and bad days. What is hardest for me to adjust to is knowing that I can't do something because it will make me feel worse in the future even though I feel fine at that moment. Like going out to dinner and eating cheese fries...I might want them really bad now but I know that an hour after I eat them I will be curled up in a ball in pain. Telling myself "No" is something I am not quite used to just yet. Don't think badly about 10-20 years down the road...just think that if you can get this under control now...the next 10-20 years might be great. My aunt(Thank God) has been in remission for 20 years! Everyone's situation is different...my Aunt had 3 feet of her small intestine removed but yet she never had to deal with Fistulas or Fissures, I don't have any problems with blockage but I have 1 fistula and 2 fissures...go figure! I hope you get well soon!

I'm sorry to hear about you being recently diagnosed. I too have been recently diagnosed and feel EXACTLY like you do. Family and friends are trying to be supportive but sometimes they say things that piss me off like: "That's what you get for going to school and working you overworked yourself." Or "why don't you eat more--you are you supposed to keep your strength? (not knowing that eating makes the pain WORSE)" Or "congratulations on the weightloss" (never mind that you lost 20# in 3 weeks and you're scared cause you don't know when it's going to stop) Kindda feels like a bad dream and then every day something "new" comes up--now I'm TIRED... can't find anything on the internet to help with "tiredness". I am 35 so I REALLY took my health for granted because I was like hey, I eat right, I excercise 5-6x week, I don't smoke or drink, I am invincible. It's kindda like, I NEVER in my life thought about going to the bathroom or not going, or making sure what I ate didn't kill me later that day. I never thought about people that lived with chronic pain every day or with things that are incurable. You feel bad for them but you could never NEVER really know what they are going through. This site is awesome. Thank you judyk89 and decrapster for bringing some positive things during our up and down times. =0) Hang in there. The veterans said there is hope for us. That maybe in 10-30 years the drugs will be better. We have to keep that hope. Take care.