I'm glad you asked this. I have been so puzzled by my own symptoms and didn't know anybody else was in the same boat.
I don't have elevated SED rate or CRP and I have horrible joint pain.
This all started after the birth of my child 2 years ago. The first thing to go was my sternoclavicular joint. This is the only joint that is visibly swollen and it has been exactly the same for over a year. MRI showed nothing, just soft tissue inflammation. "No arthritis", he said. "Well...what is it then?" "No idea". Here's your bill.
Heels hurt in the morning so badly I hobbled. Terrible, terrible shoulder stiffness and my neck went out 5x a month so I couldn't turn my head.
Then...the GI problems started. Ironically, when I scanned my body during this time, I was able to remark? "You know what the odd thing is, I don't feel achy like I did before"...Until now. Now I can barely walk, my hip aches so badly. And the pains shooting down my legs are starting again. No bloodwork turns up anything yet but I go to Oahu in September for a rheumatological evaluation. No Rheumy here on Maui
Nanners, I am glad to learn that they are going to start you on something that may make you feel better. I read that you were being evaluated and was looking forward to learning what happened. I really hope the methotrexate helps you.
BTW, hsmom, I am planning on homeschooling my child. Hopefully I will still be able to.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Currently taking Entocort 6 mg/day (tapering down), Asacol, Protonix 40mg/day.
On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).
Gastritis is back - constant, gnawing hunger. Yech.
Post Edited (killerzoey) : 8/25/2007 7:29:07 PM (GMT-6)