Saw another doctor today!

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Nana CC
Regular Member

Date Joined May 2007
Total Posts : 121
   Posted 8/24/2007 8:17 PM (GMT -7)   
Pfanner is in with Winn, Winn called this morning and told me could get me in at 11, I said great I would be there. She was very nice but the first thing she told me was I had to quit smoking right now. OK! Then she ordered some more blood work and a Dexa scan to check my bones. She told me to go back on the Librax 4 times a day and increase the imuran to 100mg a day and increased the prednisone back to 40mg a day. I told her my husband thought I was doing better when I took the xanax and that was a big no. I explained my life at this time was working and sleeping and that it was really no life at all. I actually broke down crying which I never do in public like that (you know sign of weakness and all that crap) but I just couldn't help it. I explained I was eatting 1 meal every 2 days because of the pain it caused and the d that came with it and then more pain. Was told if I couldn't eat I needed to be drinking 8 cans of ensure a day (right)! Then to top it all off I was told I was not going to get any more pain medication because they didn't want me to become addicted on top of everything else that was going on! After all that she said she'd see me in a month or 2. I felt so depressed when I left, thinking I'll try all these things but what will I do if the pain doesn't get better, just suffer for a couple of months. I explained I'm trying to work and only take medication on the days I really need it and only after I get home from work. Oh well, I'm trying to hope making the med changes will help. God I hope they help. I'm so tired of living like this and in all honesty it's only been what 4 months. I don't know how you all do it for years and years. I'm hoping one of these days I'll be able to write about getting my life back but until then I only have this hurt to talk about and I apologize for that.
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.

Veteran Member

Date Joined Apr 2007
Total Posts : 532
   Posted 8/24/2007 8:49 PM (GMT -7)   
It really stinks going to a new doc sometimes. I remember leaving my new GI and being in tears myself, he was very uncompassionate. I also had to change some medicine. I wondered why my neck did feel better tonight, then I realized took one extra pill today of entocort.
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 8/24/2007 9:23 PM (GMT -7)   
I'm so sorry to hear about how you are feeling. I am struggling a bit too. Although not in the same way. My body hurts and aches but I can't take the aleve/advil that will actually help it, and the drugs they gave me, well i'm not so impressed. I wish that there was something that I could do for you. But I will keep you in my prayers and I hope that the changes that you make in the medication will help quickly. Please vent anytime! That's why we are here!
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 8/24/2007 11:38 PM (GMT -7)   
Charlotte, hang in there. We are all here for you. "call" and complain any time, that is what we are here for....and if you need to vent and vent and vent, then go for it. Fear of pain, (I know I panic the minute I get a twinge thinking I'll be in pain for days) doesn't help. The helplessness we feel , and subsequent anger and depression all make matters so much worse, pain wise, and life come talk to us often....and be angry and sad all you want. suppressing those feelings just reak havoc in your already tired old body....take it from someone who knows. This forum has helped me a great deal,
Am keeping you in my heart, thoughts and prayers
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Nana CC
Regular Member

Date Joined May 2007
Total Posts : 121
   Posted 8/25/2007 6:07 AM (GMT -7)   
Thank you all for your replies, I think knowing we all go through the same kind of things but in our indiviual ways as mom of two angles pointed out, helps more than anything in the world. My husband bless his heart tries to be as supportive as he knows how but he doesn't understand the way you all do. I am so grateful I found this site and I do so look forward to the day I can write and say I'm doing so much better and be able to offer advise and empathy to those that aren't. I have new post to write this morning it's how I woke up feeling and it may have come from your prayers as well as mine!
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.

Veteran Member

Date Joined Aug 2007
Total Posts : 2198
   Posted 8/25/2007 7:49 AM (GMT -7)   
Hey Nana,

I replied to your other post, but now that I read more details of your situation, I have a book I'd like to recommend. You may want to read Jini Patel Thompson's Listen to Your Gut. Jini also suffered from Crohn's and has been through all the same things, unlike the doctor's we see. She talks about meds, alternative approaches, supplements and offers dietary suggestions for different levels of illness, including liquid diets when food causes too much pain. It's a great book and I found it a comfort when I was struggling. I've talked to her online, too, and she's a wonderful, supportive lady.
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps

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