I replied to your other post, but now that I read more details of your situation, I have a book I'd like to recommend. You may want to read Jini Patel Thompson's Listen to Your Gut. Jini also suffered from Crohn's and has been through all the same things, unlike the doctor's we see. She talks about meds, alternative approaches, supplements and offers dietary suggestions for different levels of illness, including liquid diets when food causes too much pain. It's a great book and I found it a comfort when I was struggling. I've talked to her online, too, and she's a wonderful, supportive lady.
Diagnosed with ulcerative colitis spring 1999
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps