Hello Styx, I could literally write a book about
my sinus problems! There are many studies which link Crohn's and ulcerative Colitis to sinus problems. I've even found a Journal article about
septal perforation as a rare manifestation of CD. Of course, since it's rare, I just HAD to get it! my body dares to be different! LOL
I had years of chronic sinus infections and would finish an antibiotic, go back for a follow up and be infected again. I was very reluctant to have surgery, but I eventually gave in. To be honest, if I had known that I had CD, I probably would have put off the surgery. Too bad I wasn't yet Dx.
The surgery was a disaster. My sinus membranes were so friable from years of chronic inflammatin that I had uncontrollable bleeding. My septum literally fell apart and my quickie surgery took 4 hours and left me in the hospital for a week with a balloon in my sinus to keep enough pressure to stop the bleeding. My eyes were swollen shut and I was purple from above my eyebrow to down under my chin. I had so much swelling down into my throat that I was terrified that I'd need to be intubated to keep my airway
open. It was the worst week of my life.
I needed two more surgeries to try and fix problems created by the first one. Then I ended up with a pseudamonas infection that required IV antibiotics through a PICC line for 12 weeks. Fun, fun, fun!
The end result was that I just traded one set of problems for another.
Now, I am left with dead mucous membranes. The snot (for lack of a better word) gets to the dead, dry area and dries up. This is the perfect scenario for infections to grow. Now add in some Humira and I have a serious sinus problem.
I had my 3 surgeries in 1998 and soon afterward threw out all the stupid steroid sprays and everything else they gave me. I found that i would only get rebound sinus headaches from that stuff and that I was much better off using saline irrigation. Eventually, I got a new ENT and he recommnded a concoction of saline, baking soda and Bactroban cream. I was able to avoid antibiotics for a sinus infection for years, until I started Humira and slacked off on the sprays. Silly me. Now I'm back on track and even though I've been injection Humira every week, I've avoided an infection for 3 months.
I hope that you can find whatever regimen you need to get these infections under control. If you have any questions about
my regimen, feel free to email me. I'll be away for a few days and won't be around the boards, but I will be checking my email.
Keah a.k.a. Wormy
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