My main issues with CD over the last 20yrs have been my joints. I had emergency surgery this yr for my CD tho the ileum perforated, then had to have 2 more surgeries. When the surgeon operated he noted there were no intestinal CD in me at that time. I am still having D from the surgery I had C before. My ankle started to swell a few weeks ago and I called my GI (I have only seen this one 2 times since after my hospital stay I wanted this doc being that he is a crohns specialist rather than a regular GI). Due to that he wants me to see an RA which I am going to do...been too long since I saw one in this state so I start over as a new patient. My PCP called 5 RA offices and the soonest I can get in is Sept 18.
My knee and hip as well as other ankle are being affected now too. I still have dilaudid and oxycontin left over from my sureres and they are not even touching the pain...I still felt the pain while I was on 50mcg/h of fentanyl too. I have lost a great deal of range of motion in all the joints being bothered but the knee is the worst. My nana's wake is tomorrow and funeral the day after ...I am in so much pain its awful. I just called my pcp office and hoping he gives me pred or at least give me something and maybe see him in the morning.
My GI called in entocort (my abdomen is still tender but only when pressure is on the area. He told me try to hold off as long as you can before taking the entocort (I have been on this before). I dont think that the entocort will help my joints though being that it is non systemic.