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Question for remicade users

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Crohn's Disease
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Posted 8/27/2007 7:44 AM (GMT -8)
Does anyone get headaches right before it is time for your next infusion?  Like if you get treated every 8 weeks, do you get headaches in week 7?  Just trying to figure out if this is CD related or not, my head has been pounding for days and my remicade got pushed out a week due to the remicade nurse being out. 
Posted 8/27/2007 12:51 PM (GMT -8)
I dont get headaches in week 7, but I do get flares.   Do you have D alot that week? Maybe you're dehydrated.

 

Posted 8/27/2007 12:59 PM (GMT -8)
Hi Want No at least I don't remember having any maybe the headaches are from your app. getting bumped. lol gail
Posted 8/27/2007 2:08 PM (GMT -8)
The appoinment getting bumped did give me a headache, lol! I thought about the dehydration factor too because I have had a lot of D. I have been downing gatorade and water all day in hopes that it will help.
Posted 8/27/2007 8:15 PM (GMT -8)
My daughter never got headaches like that. Remicade was a life-saver for her. Unfortunately, she developed antibodies. Now on Humira and Imuran and doing all right. But Remicade -- the first few infusions kicked hell out of Crohn's.
Posted 8/28/2007 1:53 AM (GMT -8)
Hi I never get headaches like that. I have been on Remicade for over 2 years. It sounds like you could
be dehydrated.I would only drink water. The average person needs about 8 glasses of water. We need
to doulble that a mount of water.
Posted 8/28/2007 12:04 PM (GMT -8)
want,

Did the Water/Gatorade help?
Posted 8/28/2007 5:36 PM (GMT -8)
No headaches, just flares the last week, letting me know I need another infusion.
Posted 9/7/2007 8:20 PM (GMT -8)
got the remicade yesterday :) The headaches finally went away but I was chugging water like a mad women, spent even more time in the bathroom due to all the water! Thanks for the input.
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