Second time in hospital this year :(

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Regular Member

Date Joined Mar 2007
Total Posts : 41
   Posted 8/28/2007 6:55 AM (GMT -7)   
For the second time this year I find myself in the hospital for my Crohn's. This last Friday I wasn't feeling too good, but what else is new? Then Saturday night things started going downhill fast. Usually when I have a bad day or two my symptoms clear up on their own, but this time they got worse. Luckily I had Sunday off of work, but then Monday rolled along and at 2:50pm I decided enough is enough. I called my GI's office and they scheduled me for a 3:15 appointment for the nurse practitioner. She asked me some questions about my symptoms, called my doctor, and called ahead to the hospital to have me admitted. They got me hooked up to demerol on a PCA, saline solution, and Zophran. For the first time in 3+ days I have relief from my nausea, vomiting, and horrible abdominal pain.

Last night I had a CT scan, and the doc took a look at this this morning and said he can see where it's blocked up, but wants to try high doses of Solu-Medrol to try to clear it up, and only do surgery if that doesn't work. I really didn't want surgery back in Feb, when I was in the hospital last time. This time I am ready to be done with this. I am ready to feel good again.

I had a resection back in '00, but then my doctor moved away form my area, and the new doctor I got took me off maintenance drugs, which, I'm sure, is why I am in this situation.
Current meds: 100mg Imuran, Ambien, Prilosec, Remicade (Fourth infusion was 6/4/07), fish oil, probiotics, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 8/28/2007 7:02 AM (GMT -7)   

genoist, so sorry to hear you are sick. I hope the meds clear your blockage!

good luck!  Karen


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also taking Multivitamins, B Vitamis, Biotin, and Extra Folic Acid. (might add more when I do more research)

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 8/28/2007 7:07 AM (GMT -7)   
I'm really sorry you having such a hard time. I hope the drugs help.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 8/28/2007 8:46 AM (GMT -7)   
If you're on all those drugs and you still get flares/obstructions, maybe it is time for surgery. Ask your doctor for a referral to a surgeon. It's not like you haven't tried.
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/28/2007 10:07 AM (GMT -7)   
So sorry to hear you are feeling so bad. I had 3 hospitalizations earlier this year myself, had multiple catscans and a SBFT and they could never find the blockage, but I have had a block before, and I felt the same way. They said I probably had a partial obstruction. They gave me Pred for a few months and that finally helped kick things back in the right direction. Sure hope you get some relief soon. If you don't, I would demand a referral to a surgeon. No one should have to suffer like that. Good Luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 8/28/2007 10:23 AM (GMT -7)   
Looks like you really do need surgery. Better to get it over and done with, then by Christmas you should feel like you're
more normal self. Hi, Judy, how you doing?

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Mar 2007
Total Posts : 41
   Posted 9/3/2007 11:21 PM (GMT -7)   
Well, I'm out of the hospital. Along with seeing my regular GI when I was in the hospital I also saw a surgeon that he partners with. The pain meds, steroids, and an NG tube to decompress my bowel got me through this time. I am going to see the surgeon again in a week or two. I think that now that I'm feeling good, it is time to get ahead of the game for once, and go for my second resection. I am ready to feel good again. My last one kept me good for 6 years or so.

A couple years after my first resection my doctor moved away for a huge promotion, so I was forced to go to another doctor. The new doctor took me off my maintenance drugs because he didn't feel that they would do me any good. Being 18 at the time, the idea of not having to take all those drugs was quite appealing to me, so I complied. about 3 years ago now I started feeling a little bad again, and in the last 2 years things got very bad again. I did a few doses of Rem, but that didn't seem to do it for me, so I am now on Humira, ready for third dose this week.

My hope is that after a second resection, and by keeping on maintainance drugs like Humira and Imuran, that I can maintain a much longer remission.
Current meds: 100mg Imuran, Ambien, Prilosec, Remicade (Fourth infusion was 6/4/07), fish oil, probiotics, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/4/2007 4:29 AM (GMT -7)   
Hi I was reading where your Dr. took you off the maintenance drugs I would think that would not be good and a flare could happen. Hoping the meds kick in soon. How were you doing before he took you off the meds?I know those old blockages can be painful glad to here your nausea has gone and I bet the pain meds are helping .Took me a little time with the pred but it did get me going again. What is Solu-Medrol? Is that a steriod or a enenema thing? Hope you get to feel better soon .Are they loading you up with ensure?lol gail

Regular Member

Date Joined Mar 2007
Total Posts : 41
   Posted 9/5/2007 8:38 AM (GMT -7)   
Solu-medrol is an IV steroid. In the hospital I was on, IIRC, 40 milligrams 3 times a day. It took a bit of time, but with that, the gut rest, and the decompression from the NG tube, things started moving again. I hope to remain healthy and put some weight on over the next several weeks to help make a surgery easier. I want to get this done soon, as I was planning on a major move early in the year, so I want to recover and be back to normal quickly.
Current meds: 100mg Imuran, Ambien, Prilosec, Remicade (Fourth infusion was 6/4/07), fish oil, probiotics, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.

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