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Crohn's Disease
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Posted 8/28/2007 2:08 PM (GMT -7)
Hi all,

With severe obstructed bowel, I had to undergo surgery where they removed around 20 cms of the small intestine including the ileum and part of the large intestine that has the appendix attached to it. This happened in March 2007.

Since then I felt great for a few months, disease free, life was great. My doc stopped all meds and gave me a few months to enjoy. Recently he did a colonoscopy and saw that the same spot where the surgery was done has little inflammation. When analyzed it turned out to be the inflammation caused by Crohn's and not regular one. I will be starting Remicade again.

Anyway I was bummed that the disease came back so fast (the doc had told me that it would not come back for at least 3-5 years). This is not even 3 months later. Then I started getting these other symptoms that I don't understand. I am freaking out more. If you have been through these then help me please:

1. I have severe nausea since this morning. Its the worse I have had ever, even more than when I had obstructive symptoms. I have no pain, no blood in stool, feel hungry etc etc but only nausea
2. For past two weeks, I have to frequently pass bowel in the day (as high as three times). Again, no visible blood, little soft but normal stool (in terms of shape, color)

I have no weight loss.

Does anyone know what is going on? I am really frustrated

Thanks,

CP
Posted 8/28/2007 9:14 PM (GMT -7)
Sorry sorry that your resection didn't give you a longer remission. It is quite common for the Crohn's to return to the site of the resection. Usually a person will enjoy a longer remission than you had. But you are not alone because several people that post here have been ina very similar circumstance to you.

As to the nausea - are you on any new meds? If not, then it is possible that the inflammation at your surgery site is causing some narrowing of your bowel/colon. That can definitely cause nausea.

Not knowing what your bowel habits were pre-surgery, it's hard to speculate about your 3 time a day movement now. Many people with CD would love to only go 3 times a day. But since this seems to be a big change for you then it is likely tied to the fact that you have active disease happening at the surgical site.

I sure hoipe that going back on Remicade does the trick and gets your disease under control!
Posted 8/29/2007 1:18 AM (GMT -7)
what ides said,, hang in there
Posted 8/29/2007 6:45 AM (GMT -7)
hi there u sound so similar to me i also had the disease come back only 4 weeks after surgery and have been struggling since. But thats mostly because my docs really didnt believe it could come back so fast and tried to rule out any other possiblities but it was confirmed it was definately back i am having remicade infusions every 6 to 8 weeks and on pretty high doses as well as prednisone. I  hope they get to it fast for u so u dont have to go through any more from this nasty disease. take care and hope u get well soon.

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