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Crohn's Disease
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Posted 8/28/2007 8:43 PM (GMT -7)
well, today I am not on any meds for Crohns....Not my decision, just has to be for the time...and it has been a struggle, but I am working on it.

I have been on the breast cancer site these days, just dx'd with breast cancer 2 weeks ago.

I have 3 lumps one cancer, 1 not and the 3rd is up for grabs..I will know more after the lumpectomy.

I meet with my plastic surgeon on thurday, I am hoping to have  surgery for this within the next 2 weeks,

As long as there isnt any cancer in the nodes, or anywhere else I am looking at radiation a lumpectomy with reconstruction....lolol...have to admit I am getting excited about the tummy tuck,,lololol ater all those years of

prednisone, I dont know which sags more.lolol

Anyhow.....I am hoping to one day get back on Humira, but for right now nothing, and it isn't pretty.

I had one of those (accidents) in my card the other day..first time in a year that happened, but I am sure the stress and the lack of meds isnt helping.

My GI wants to put me on pred., Buttttttttttttttttttt..I said NO No NO

I just cant go on prednisone have my breast removed, radiation and pred., (has he lost his mind)

lolololol I would be a raving idiot...I just can't do it, so I am using alot of anal mantel, immodium, welchol, and anything else that will block me up.

Anyhow, I would lke to thank ALL of you, I am so fortunate to have me so many people here that have helped me through my worse days....but I too always remeber that my glass my not be full but it sure in the he$$ isn't 1/2 empty.

Have a blessed day> 

Posted 8/28/2007 9:03 PM (GMT -7)
Hi

I'm new here but wanted to send you a hug. I see from your post and your signature how much you have been through. Best of luck with the surgery. - Jamie
Posted 8/28/2007 10:02 PM (GMT -7)
Ditto the hug! I wish you well. :-)
Posted 8/28/2007 10:18 PM (GMT -7)
Sorry for your recent DX with the breast cancer....best wishes for all to be well for you and lots of hugs too.

:)
Posted 8/28/2007 10:31 PM (GMT -7)
Sending you much love and prayers. You have been through so much and you difficult journey never seems to end.
God send you His Loving Grace and keep you in His Peace throughout all of these trials.

Mary
Posted 8/29/2007 3:19 AM (GMT -7)
I'm sorry to hear of your DX of breat cancer.I know that it's not easy for you,I have never had breast cancer but my sister had breast cancer and about two months ago she was given a clean bill of health she is in remission thank god.

My sister took radiation and she did better than even her Doctors thought she would have done.My sister had a parserl(sp)lumpectomy.She is having reconstructive surger in a few months.

I just wanted you to know you are not alone and you will be fine and I know in my heart that you will beat this.If you ever want to talk please let me know.
Posted 8/29/2007 3:21 AM (GMT -7)
Hi Just wondering if a low dose of pred. would help without getting too many symnptoms. Sure sounds like you got plenty in your cup hoping that the surgery will be soon waiting sometimes is hard on a person.Best Wishes for a speedy recovery keep in touch we"ll be thinking of you.lol gail
Posted 8/29/2007 3:27 AM (GMT -7)
Hi I sending your Hugs and my prayers are with you.

teddybear
Posted 8/29/2007 10:18 AM (GMT -7)
Sending up prayers that all will be well with you. ((((BIG HUGS))))
Posted 8/29/2007 12:48 PM (GMT -7)
((((Big Hugs))) to you. I see you have been through a lot by your sig. I hope you get good results from the surgery and nothing in the nodes!!!! Karen
Posted 8/29/2007 5:40 PM (GMT -7)
oh miracles! My heart literally hurts for you. My mother was diagnosed with stage 3 breast cancer in 2001. I know all the trials and scares and medicines you could possibly go through. My heart goes out to you. If you need someone to talk to let me know.

She tested positive for lymphnodes having it. luckily it didnt spread. She had a full masectomy, reconstruciton, chemo, raditation, and a bone marrow transplant. I will pray you will have a much easier road. I will tell you that she has been in remission next month 5 YEARS!!! IT CAN HAPPEN. believe it as your screenname says! You are a soldier. God bless u!
Posted 8/29/2007 6:03 PM (GMT -7)
((((Miracles))))Well if it makes you feel any better the chemo will proably give you C. small comfort I know. Plus they give pred with the chemo to combat the inflammation that goes along with it.
Posted 8/29/2007 6:30 PM (GMT -7)
(((HUGS))) to you! I can see you are such a strong person. With everything you've gone through, I admire your strength!

I hope your surgery goes smoothly and that they get all that cancer out of there!
Posted 8/29/2007 6:38 PM (GMT -7)
You will beat this I know you will I can feel it you have a great spirt and that is all God ask of us leave the rest to him.

God bless you ,sm
Posted 8/29/2007 6:46 PM (GMT -7)
Miracles - the saying "life is not fair" certainly applies to you. Maybe you can write a book about all you've been through... Good luck with your surgery and treatments. I'll be cheering for you.
Posted 8/29/2007 8:02 PM (GMT -7)
wow..you all have touched me so much.

Ski bum, everyone tells me that lolol, and..... I always wanted to be a comedian.lolol

I think I should take up some type of speaking, I wish that I could help others who are going through stuff like this...And as you can see by how many times i post, I love to talk.

I truly believe that I am entiring a whole new part of life, and I just wish I had others to entire into it to with me (PlAnning to work out more, eat much better, beginning a very optimistic part in my life mentally and pysically)...., & .....I truly believe that there is a reason for everything.

When I was no lonGer able to work, I was so upset, DOC SAID i WAS DEPRESSED, I SAID NO, TICKED OFF, BUT NOT DEPRESSED I said to my husband, what IS the purpose of all of this, and he said "to make me happy" lolol, wellllllllllllllllllllllllllllll, THAT DOESN"T GET IT, not that I don't enjoy making him happy I believe that God has a much bigger purpose for me ...I think maybe it is to let others know that you can truly come through hell....AND BE BETTER BECAUSE YOU HAVE BEEN THERE.

The one thing that was worse then all of these diseaseS put together was watching my only son become a drug addict.....and I dont mean pot,,.....I have been places to get him, that still makes my skin crawl, But today I am proud that he is clean and loving life for almost a year, and since i wouldnt,let him put my name on his body..( seemed a bit wierd, and mom, is just so typical) he had the rosary tattoed, and everytime he looks at that roasry it reminds him of what his mother did for him, and he is grateful.....and I am loving life because of it. hE JUST DOESNT UNERSTAND YET, THAT IT WAS HIM...NOT ME. bUT HE WILL!!!!

Even so, I don't believe GOD's purpose for me was to go through cancer 3 times, live with crohns, seizure out while on the dance floor ( everyone thought i was doing the steve erkle thing lololol)
I believe there is a biggger purpose, and maybe it is to help other people. Maybe one day Oprah will call LOLOLOLOLOLOL...... talk about
" a million pieces"..that guy had nothing on me lololol But I am not in a million pieces, I am whole...and I am strong.....but I got that through people who are just like me, people who suffer with illnesses, diseases, hardship, heartbreak,lonliness I could go on and on...But IT is life....& I do love it....
Don't get me wrong I have my pity days, I cry and ask why, But,
I think about people, like babies who have cancer, I see them all the time, and my troubles seem like nothing, I can complain and B*Tc&H they can't, they just take it and they are so strong...thats what gets me through...
people like all of you, those who live with pain everyday,
and overcome... AND EVEN THOUGH PEOPLE SUFFER there are those who .are so sweet, and thankful, and caring, giving those who fight strong to live.... thats WHAT MAKEs ME LOVE LIFE.

I have to give alot to my mom....she has told me since I was little...U R STRONG< GET UP AND FIGHT< SHE NEVER LET ME FEEL SORRY FOR MYSELF, EVERYIME I HAVE GOTTEN CANCER, SHE SAYS "you have had bigger fights then this, and won!!!

sORRY i RAMBLED....BUT i AM PRINTING THIS, YA never KNOW, i MAY BE USING IT IN MY NEW BOOK! LOLOLOLOLO


lOVE YA GUYS.
Posted 8/30/2007 4:34 AM (GMT -7)
I will be praying for you . I just finished treatment for rectal cancer. It is gone for now, thank god. I had to stop all my meds also during chemo and radiation. It was hard but manageable.


Don't we all look at life different after cancer?
Posted 8/30/2007 11:05 AM (GMT -7)
Crohnie 42,
....we sure do. I told my sister in law today who by the way was also dx with breast cancer this month...that if evryone treated everyone else as though they had cancer, it would be a wonderful world...I find myself looking at people in line at the store, and wondering...do they have cancer,or what is their cross...and I am a much nicer person because of it.....I have to stop bagging ALL the little ladies groceries though. lololol

By the way...went to the plastic surgeon today..I thought I was FINALLY getting that tummy tuck,BUTTTTTT I don't have enough fat there to make the breasts.....lolololololollol that cracks me up!!!!!!!!!! I wish he would have seen me during my prednisone days, when I was pushing 200...I have lost so much weight I have no fat on my bottom either, so I am opting for the silicone. Not pamala anderson's but, he promised me that they will look better after the reconstruction then they do now....So thats SOMETHING to look forward to, and my son is coming home for 3 days next week-end...I havnt seen him since MAY...I am so happy, I have missed him so much
Posted 8/30/2007 6:06 PM (GMT -7)
My thoughts and prayers go out to you.....*hug*
Posted 8/31/2007 4:34 AM (GMT -7)
Hi Great your son is coming home our kids really give our hearts a lift .Sounds like you are getting to the finishing touches with reconstuction in mind. In the old days there wasn't any and it must have made things alot tougher for women. You are right about people being kind to each other I meet people at the ambulatory care unit when I get my Rem. and we all have caring towards each other .Makes it easy .Keep that caring attitude with you it helps bring good within.lol gail
Posted 8/31/2007 12:57 PM (GMT -7)

I firlmy believe that what you give, will always come back to you.

If you are good, good will come...Sometimes it doesnt seem that easy but we all have seen a miracle a time or two.

We just have to keep the faith within ourselves and believe.

Posted 9/1/2007 1:03 PM (GMT -7)
you are all such caring people, I am so lucky to have this place to come to
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