I'm soooo confused!

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Sad Mom!
Regular Member

Date Joined Aug 2007
Total Posts : 58
   Posted 8/29/2007 10:24 AM (GMT -7)   
Hi everyone,
I am not sure about what is going on here. My son who was dx with Crohn's after a colonoscopy this month. The colonoscopy showed aphteous ulcers and inflammation of the colon. The doctor gave him Pentasa and he just finished 2 weeks of Flagyl. The symptoms he has been showing from the beginning was diarrhea 5-6 times a day, cramping and pain around the navel area, and blood every now and then. His bloodwork showed elevated white cells and low hemoglobine. However, since he has been on Pentasa, his b/m are now 1 or 2 times a day and of soft consistency but not watery. Last night he had a b/m and red blood quite a lot was in the toilet, coating on the outside of the stools. He says that he bleeds when he puts a little force in order to evacuate during a b/m. The G.I. we saw early this month said that he had a skin tag and that it should be left alone. The doctor did not mentionned anything like fissure, fistulas, or hemmoroids as a matter of fact, my son had to tell him about the skin tag (so the doctor says). The results from the biopsies of the colonoscopy (which we had to ask for) showed nothing. The doctor wants to put him on 6mp (i guess because of the bleeding), but we don't know where the bleeding is. The G.I. who we have been referred to is a Crohn's specialist. I am sure he is good at what he is doing (at least I hope so!) but I feel that there is no explanation from his part. How do we know for sure it's Crohn's. I don't know what to do. Should I asked for a second opinion? Please help me make sense of all this. I am going insane!!!

Veteran Member

Date Joined Mar 2006
Total Posts : 501
   Posted 8/29/2007 10:31 AM (GMT -7)   
I guess you could get a second opinion if your insurance approves it? It sounds like crohn's to me. I would be concerned about the bleeding though. If the doctor isn't answering your questions, you should probably seek out another one.

Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2007 10:38 AM (GMT -7)   
When the blood is bright red it is usually from Hemmoroids or a Fissure. If its dark blood that means its coming from deeper in the intestinal tract. I think you should let him take the 6mp. Many folks have had great success with the 6mp. A little tip, have him take it at bedtime, if there are going to be any side effects he will sleep right thru them. Side effects would be nausea and fatigue. I took it at night and had no problems with it. Good Luck!

P.S. You can have internal hemmoroids.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 8/29/2007 10:50 AM (GMT -7)   
If he has anal skin tags that's a dead give away right there for one thing because those are related to crohns only, not UC or IBS.

as well as you said " The colonoscopy showed aphteous ulcers and inflammation of the colon." which also indicates crohns (affecting the colon which is refered to as crohns-colitis), he may also have CD afecting his small intestines, he should have an SBFT to check for that...and stool tests...the bleeding is likely comming from somewhere inside.


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Sad Mom!
Regular Member

Date Joined Aug 2007
Total Posts : 58
   Posted 8/29/2007 1:54 PM (GMT -7)   
He had a barium small bowel but we are waiting for the results on sept. 5, next G.I. apt. The stool tests were clear of bacterias and parasites. Is there a blood test or something that confirms Crohn's? Thank you for your help, it's nice to get answer when we are worried sick and waiting for the next doctor apt. PB4, What do you mean when you say the blood is coming from somewhere inside, could you please be a little more specific. How do we know for sure about anal skin tag?

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 8/29/2007 2:09 PM (GMT -7)   
A promethius test is a blood test it can show false neg though I believe false pos too. The most acurate tests are the colonoscopy, SBFT, CT scan, and the newest CT enterography
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/29/2007 2:14 PM (GMT -7)   
Hi Sad Mom The scope showing inflamation and uclers definitely tells you that he has IBD .Many of us with IBD are on 6mp it helps the body from attaching itself. I can understand your concern but sometimes it is a matter of waiting for test and getting the meds that control the symnptoms. I think that you need to put some trust in your Dr. now because he knows a lot about the disease. Have they suggested B12 for him? When they talk about blood coming from inside they mean it would not be hemmies. Try to hang in there and give things a little time I am sure that getting the dX was very worrying to you but you are getting the necessary test done and like I said leave some of the worry on your GI shoulders they are the specialist and I am sure are very keen on seeing your son gets the proper treatment.lol gail

New Member

Date Joined Aug 2007
Total Posts : 10
   Posted 8/29/2007 3:37 PM (GMT -7)   
Hi Sad Mom,
I am sorry to hear about your son and his diagnosis.  I know as an adult there are days that is is a rough thing to deal with, I am not sure how I would handle it if one of my boys got this icky stuff.
Certainly I agree with all the other posts, it doesn't sound like it is anything else but Crohn's, especially to those of us that have it.  One less dramatic thing to think about is after my colonoscopy in April, about 3 weeks later I had a bleeding episode that looked like I was hemoraging (sp) it was very dramatic and scary.  When I called my GI to report it, based on what my scope showed it wasn't anything additional, and sometimes those scopes can be so irritating, that if you have a more solid bowel movemement or a day where you go a few more times than what might have been "normal" for the past few days that bleeding can occur.  There are some things additionally in his case that warrant a call to the doctor, but there are some not so scary things to consider as well. Second opinions can never hurt if your "mommy gut" says that you need some additional attention.  Best wishes.
DX-2006, Resection,2006 at diagnosis, 3 months before wedding, prednisone dependant for most of the last year. Pentasa and 6mp.

Regular Member

Date Joined Jun 2007
Total Posts : 340
   Posted 8/29/2007 8:40 PM (GMT -7)   
When there is ulceration in the GI it can't be anything other than crohn's or uc (IBD) can it? Maybe I am wrong, but that's what I had thought.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 8/30/2007 3:51 AM (GMT -7)   
Hi I recommend you get a second opioion. It would not hurt for another opioion.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Feb 2005
Total Posts : 1146
   Posted 8/30/2007 1:00 PM (GMT -7)   
There is a blood test, the Prometheus Test, that can differentiate between Crohn's and UC.  It should really just be used as a part of the whole picture, as some people have inaccurate results.  The true definitive test is the biopsy.  However, Crohn's will not always show up in the biopsy, even if you have it.  It took until my third colonoscopy before it showed up for me. 
I believe that what PB4 was trying to say by bleeding coming from the inside is that it is probably not coming from his skin tag, but from the ulcers inside themselves. 
Co-Moderator Crohn's Disease Forum
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Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 8/30/2007 1:28 PM (GMT -7)   
Yep. The skin tag sorta clinches the diagnosis. The other stuff says IBD for sure, but not which, but a tag is CD ONLY. At this point I think you need to concentrate on treatment(s) and not worry about what it is.. No need for confusion, this should be a time for investigating treatments & finding the most effective.


Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 8/30/2007 3:21 PM (GMT -7)   

Sad Mom!  :)

here's a link that first shows pictures of hemherroids and below that shows pictures of perianal crohns skin tags (aka: elephant ears)...you can clearly see the difference between the anal skin tags and hemmies.




And yes, as kitkat clarified, bleeding can come from inside the tissues of the intestinal lining, often due to severe enough inflammation and polyps.


And as Mathew also clarified, anal skin tags equals crohns and not UC or any other bowel disease.



My bum is broken....there's a big crack down the middle of it!  LOL  :)

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