well...there is still so much work to be done, but I have gotten some relief with my pain (some) with some loratab (which make me sick) and some pred and some other stuff....but today at least one of my labs came back for the arthritis but still waiting on labs from the GI:
sed rate of = 62!! they said it should be around 20 or lower so I definitely have some inflammation somewhere ...finally I feel like someone believes me about the bone pain
next stop is colonoscopy/endoscopy and xrays of bones in the upper right part of my body
the small bowel followthru showed nothing so thats good news
I will let ya'll know. It feels so good to be making some progress towards being out of pain!! Thx to everyone whos listened thus far.