Hi Cherriepie -
I understand how you are feeling. I recently had to make the decision to go on Remicade because I was having more bad days than good. I was in a flare for more than 6months and was getting progressively worst with increased medication. So in July I had no other options but Remicade.
So far, I have had 2 infusions and will have my 3rd infusion on 9/6 and have been doing very well. I have been feeling better and having more energy that I have had in the last year.
You have to do what is best for you but know I really understand how you are feeling.
MMAC, Wife & Mother of 3 (14, 13 & 7) - Diagnosed w/CD June05 (terminal ileum)
Asacol (9 daily), Imuran (150mg), Prenisone (15mg), Cipro (1000mg)Lunesta (3mg), Phenergan (when needed) - Remicade as of 7/24