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2nd Remi Infusion

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Crohn's Disease
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Posted 8/30/2007 4:16 PM (GMT -6)
:-)  Well my second infusion went much better.  The first I was very flu like afterwards and it burned going in.  They gave me the benedryl BEFORE not during the infusion and so far no flu like symptoms. I feel just a bit sore in the tummy but nothing compared to the first time.  I also got a B12 shot and am doing fine!  It's a miracle, I was so scared to go back.
Posted 8/30/2007 5:57 PM (GMT -6)
Hi Jenn-

Glad your 2nd infusion went better!

I'm not sure if you have lots of saide effects after you get the treatments, but I take benydryl for a few days after my treatments (at bedtime) to cut down on the joint pain and the sore throat and headaches. My Dr. told me to try it. It helps a little.

Hope the remi is doing it's job for you! :-)

Ginger

Posted 8/30/2007 11:08 PM (GMT -6)
Yay, I'm so glad it was better for you this time!
Posted 8/31/2007 3:24 AM (GMT -6)
Hi Jenn,
I am glad your 2nd infusion went better. After the third one you should feel much better. I have been
doing Remicade for over 2 years and I feel almost normal.

teddybear
Posted 8/31/2007 4:45 AM (GMT -6)
Hi Jenn So happy things went better for you it must have releaved your mind alot.I just had my fourth with double dose and it went better then expected.I was a litle nervous but had no problems getting it done.I sure am getting a great cleaning out and stomach is not so distended .Had lots of gurggling with this one. Glad the air is coming out I feel better .Hopefully you will find them easier now and your body will adjust to the IV's. lol gail
Posted 8/31/2007 11:44 AM (GMT -6)
I was also having trouble with the IV in my arm so they put it in the back of my hand, much better!
Posted 8/31/2007 4:47 PM (GMT -6)
Hi Jenn -

So happy the 2nd infusion went well and thank you for keeping the "new remi crew" posted. I have my 3rd infusion on 9/6 - so will keep you posted.

Again - so happy things went good and hope the next is even better!!!
Posted 8/31/2007 4:53 PM (GMT -6)
Jenn, Glad it went better for you.  I have been on remi for three years, now at a double dose every 6 weeks. It saves my life, I literally function with it.  I take benedryl by I.V. too before the infusion and learned to have the I.V. in the back of my hand too.  It took a while to get my dosing right on Remicade to make it work, but when I did, it was such relief.  I now know a week before, because I start feeling crummy.  I also take Methotrexate by injection once a week.  Best wishes, Janice

Posted 9/1/2007 7:05 AM (GMT -6)
Hi Jenn I always get mine in the hand I usually stock up on a little water before I go get it and get them to give me a warm blanket first sometimes they tap on my viens first which helped.I get the steriods before mine. I was very surprised that double dose was just as easy for me .Let us know how you feel it can take a bit for your GI to work out when and how much you need hopefully this dose will do it's magic on you .lol gail
Posted 9/2/2007 3:13 PM (GMT -6)
Cool! I get my 3rd infusion on sept 13. I was not seeing ANY results until today actually where I haven't had any diarrhea whatsoever the first time in 7 years (except for when I'm on high doses of prednisone). So maybe it is actually starting to work!

The hand veins always hurt less for me too!

take care
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