post humira

Started humira in June, I continue to have all over body achyness.  My neck, top of shoulders & back ache the worst 7/10.  I now have eye inflammation which we're trying to figure out if its my contacts or not.  My pain meds don't take care of the achyness anymore, I don't know what to do.  Scheduled an appt with the gi end of Sept.  The aches & stiffness in my neck & upper back is overwhelming.  My feet & hands ache but also tingle & become numb quickly when not moving.  Anyone have any insight?  Thanks, God Bless

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Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 

 

Meds:  Hurmira every other week 40 mg, Imuran .75 daily, cymbalta 40 mg daily, Lortab 7.5/500 x 4x, fish oil, fovia,vit e,folic acid,Vit B12,inject monthly,

 

         

 

 

Maybe you should get in to see a Rheumatologist. My Rheumy was telling me that Humira would help with the joint pain and many folks on here who use it say the same. So I am a little surprised it would cause that as a side effect. I know what you are talking about, my belly is okay right now, but my joints are killing me. Was supposed to start Methotrexate shots today, but had to cancel because the Folic Acid I am suposed to take with it tore up my stomach too much. Hope this helps.

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Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Tingling in the hands and feet can be a sign of peripheral neuropathy, which is a known side effect of flagyl. I developed it after about 6 months on flagyl and had to be taken off. I'm not allowed to take it any more. Neuropathy isn't something to mess around with as it can become permanent. It took about a month for my hand to get back to normal.

The other symptoms sound like serum sickness, similar to what you get from remicade. Is it similar to what you got with your remicade reactions? I'm sorry you're going through all this. Sometimes the side effects are worse than the disease.

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"Only the meek get pinched...the bold survive." 

My reaction from remicade was anaphalic, these aches & tingling of the body, feet & hands started last October.  We're trying Humira thinking it would take care of these symptoms but they're still there.  I was also dx with major depression a couple of months ago, but, I honestly do not believe all these symptoms are from depression.  Its a vicious circle, when I see my gi at the end of the month what should I ask him to do now.  Seeing the humira isn't taking the aches away.  If I don't keep up on my pain meds through the day, the aches crept up & I can't stand it.  Should I get a mri of the body, if its even possible to do the whole body at one time, or see a neurogolist?  The aches are deep bone not muscular, but, my muscules are also sore.  I just need a plan to talk to the doc about.  Also, my pain meds give me some energy, otherwise, I'm so fatigued.  Last week was on the couch for 3 days.  Just exhausted. 

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Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 

 

Meds:  Hurmira every other week 40 mg, Imuran .75 daily, cymbalta 40 mg daily, Lortab 7.5/500 x 4x, fish oil, fovia,vit e,folic acid,Vit B12,inject monthly,

 

         

 

 

One of the reasons they list so many side effects to the various medications is because everyone seems to react differently....some not in any kind of major way...others go off the charts.

I am less than a week into my loading dose of Humira and my joint pains are worse than they ever have been and the pains in my back and neck come and go wth great intesity.  I also keep getting a sharp headache in one spot of my head.

Several years ago, the first quack...I mean Gastro doctor I went to told me i had severe reflux...even though I had never noticed any symptoms nor had I ever had any kind of acid.  In my whole life I had never really felt any kind of acid burn in my stomach or throat...but he insisted I had it.  Even told me it was eating away the passages for my food.  I told him I never felt a thing...he said it was normal.  So he put me on Nexium...within days I started feeling like my stomach and throat were on fire....I had constant acid and woke at night wth choking reflux.  I got a new doctor....complained about the nexium causing my acid reflux...he read my charts and the other doctors notes and he insisted that I had reflux issues.  I said ..YEAH..NOW!!!  He said 1 in a million people get worse wth nexium and he had yet to ever meet that 1 in a million.  I convinced him to do a acid swallow test (a very nasty test...i hated it)...I had to qut the Nexium for 2 weeks...then he did the test.  I tested normal.....just for grins he told me to statr the Nexium again...i did and the acid came back.  I quit nexium for good and no longer have acid reflux.....

Point being....the pains and aches may be your reaction to the Humira....it may control your gut and your joints may be rejecting it....each to own...only you can know if it is worth continuing to take.

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dx IBS 1999   UC 2000   CD 2001

Tested BIOGEN TYSABRI (gave me 2 years of remission)

currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...will start Humira Aug 28th 2006

Crohns is currently active and has been since April of 2005

50 yrs old

Even though I started my HUMIRA last thursday, I got my denied by insurance letter in the mail today, followed by the you have been approve letter right after that. LOL gottat love insurance companys

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Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 165lbs). On HUMIRA, Prednisone, Levsin
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