Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

post humira

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
keepingthefaith
Regular Member
Joined : Aug 2006
Posts : 331
Posted 8/30/2007 10:34 PM (GMT -8)
Started humira in June, I continue to have all over body achyness.  My neck, top of shoulders & back ache the worst 7/10.  I now have eye inflammation which we're trying to figure out if its my contacts or not.  My pain meds don't take care of the achyness anymore, I don't know what to do.  Scheduled an appt with the gi end of Sept.  The aches & stiffness in my neck & upper back is overwhelming.  My feet & hands ache but also tingle & become numb quickly when not moving.  Anyone have any insight?  Thanks, God Bless
profile picture
crohnie42
Regular Member
Joined : Dec 2006
Posts : 371
Posted 8/31/2007 4:02 AM (GMT -8)
Doc just explained to me that that is a common side effect
profile picture
Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 8/31/2007 5:38 AM (GMT -8)
Maybe you should get in to see a Rheumatologist. My Rheumy was telling me that Humira would help with the joint pain and many folks on here who use it say the same. So I am a little surprised it would cause that as a side effect. I know what you are talking about, my belly is okay right now, but my joints are killing me. Was supposed to start Methotrexate shots today, but had to cancel because the Folic Acid I am suposed to take with it tore up my stomach too much. Hope this helps.
profile picture
keepingthefaith
Regular Member
Joined : Aug 2006
Posts : 331
Posted 9/1/2007 7:21 AM (GMT -8)
Thanks for the replies.  I've been to a rheumy.  All tests neg.  I was allergic to remicade & had bad reactions a few years ago.  I truly believe everything i'm feeling is side affects from flagyl & remicade.  Sometimes I guess I just want someone to agree so I don't feel like i'm going crazy.  God Bless, have a great weekend.

profile picture
Betagirl
Veteran Member
Joined : Jan 2003
Posts : 1928
Posted 9/3/2007 6:11 AM (GMT -8)
Tingling in the hands and feet can be a sign of peripheral neuropathy, which is a known side effect of flagyl. I developed it after about 6 months on flagyl and had to be taken off. I'm not allowed to take it any more. Neuropathy isn't something to mess around with as it can become permanent. It took about a month for my hand to get back to normal.

The other symptoms sound like serum sickness, similar to what you get from remicade. Is it similar to what you got with your remicade reactions? I'm sorry you're going through all this. Sometimes the side effects are worse than the disease.
profile picture
Mac_Gyver
Regular Member
Joined : Aug 2007
Posts : 349
Posted 9/3/2007 2:50 PM (GMT -8)
Hope it passes. So far my HUMIRA experience is good but Im just a week into it. Fingers crossed.
profile picture
keepingthefaith
Regular Member
Joined : Aug 2006
Posts : 331
Posted 9/3/2007 3:02 PM (GMT -8)
My reaction from remicade was anaphalic, these aches & tingling of the body, feet & hands started last October.  We're trying Humira thinking it would take care of these symptoms but they're still there.  I was also dx with major depression a couple of months ago, but, I honestly do not believe all these symptoms are from depression.  Its a vicious circle, when I see my gi at the end of the month what should I ask him to do now.  Seeing the humira isn't taking the aches away.  If I don't keep up on my pain meds through the day, the aches crept up & I can't stand it.  Should I get a mri of the body, if its even possible to do the whole body at one time, or see a neurogolist?  The aches are deep bone not muscular, but, my muscules are also sore.  I just need a plan to talk to the doc about.  Also, my pain meds give me some energy, otherwise, I'm so fatigued.  Last week was on the couch for 3 days.  Just exhausted. 

profile picture
gemini kiwi
Veteran Member
Joined : Nov 2006
Posts : 1136
Posted 9/3/2007 4:13 PM (GMT -8)
Sorry your having a rough time right now, this disease just keeps on giving. These past few weeks I think if I was a horse I'd be shot the way I've been feeling also.
take care,
GK
profile picture
hspenser
Veteran Member
Joined : Dec 2005
Posts : 544
Posted 9/4/2007 4:16 AM (GMT -8)

One of the reasons they list so many side effects to the various medications is because everyone seems to react differently....some not in any kind of major way...others go off the charts.

I am less than a week into my loading dose of Humira and my joint pains are worse than they ever have been and the pains in my back and neck come and go wth great intesity.  I also keep getting a sharp headache in one spot of my head.

Several years ago, the first quack...I mean Gastro doctor I went to told me i had severe reflux...even though I had never noticed any symptoms nor had I ever had any kind of acid.  In my whole life I had never really felt any kind of acid burn in my stomach or throat...but he insisted I had it.  Even told me it was eating away the passages for my food.  I told him I never felt a thing...he said it was normal.  So he put me on Nexium...within days I started feeling like my stomach and throat were on fire....I had constant acid and woke at night wth choking reflux.  I got a new doctor....complained about the nexium causing my acid reflux...he read my charts and the other doctors notes and he insisted that I had reflux issues.  I said ..YEAH..NOW!!!  He said 1 in a million people get worse wth nexium and he had yet to ever meet that 1 in a million.  I convinced him to do a acid swallow test (a very nasty test...i hated it)...I had to qut the Nexium for 2 weeks...then he did the test.  I tested normal.....just for grins he told me to statr the Nexium again...i did and the acid came back.  I quit nexium for good and no longer have acid reflux.....

Point being....the pains and aches may be your reaction to the Humira....it may control your gut and your joints may be rejecting it....each to own...only you can know if it is worth continuing to take.

profile picture
keepingthefaith
Regular Member
Joined : Aug 2006
Posts : 331
Posted 9/4/2007 9:21 AM (GMT -8)
Thanks Hspencer for your reply.  I'm taking a shot today of humira & will watch my symptoms very closely.  I'm just having a hard time, not only the physical issues but mentally too.  Its so hard to think positive when every second we're reminded we have this horrible CD.  God Bless

profile picture
Mac_Gyver
Regular Member
Joined : Aug 2007
Posts : 349
Posted 9/4/2007 1:59 PM (GMT -8)
Even though I started my HUMIRA last thursday, I got my denied by insurance letter in the mail today, followed by the you have been approve letter right after that. LOL gottat love insurance companys
✚ New Topic ✚ Reply


More On Crohns Disease

What Foods Trigger a Crohn's Flareup?

What Foods Trigger a Crohn's Flareup?

7 Lifestyle Changes a Patient with Ulcerative Colitis Should Make to Help Combat the Condition

7 Lifestyle Changes a Patient with Ulcerative Colitis Should Make to Help Combat the Condition


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.