Get a pill cam and a second opinion. My GI did a colonospopy and pill cam on me, discovered I had crohns disease in ilieum and esophagus ...didn't bother to tell me....sent the results to my family doctor. Apparently after discussing it with each other, and knowing my personal history and difficulties at the time, they agreed that it would be best NOT to tell me I had crohns disease. Put me on med, but failing to have a pharmacist that relayed anything, and no computer to check things out, I took their word for it and thought I was going absolutely coo-coo. .....this had to be all in my head...after all , according to them I did tend to worry about everything etc.
Well, it was 2 years later, in a major, major flare that I ended up back in the GI's office and he says. "By the way, I diagnosed with crohns disease 2 years ago...how've you been?" I could have chocked him. I guess, knowing that all hell was breaking loose in my life at the time, they figured they were doing me a favor....their intentions may have been well-meaning....but I haven't been able to take a doctor's word for anything since then.
Get a second, and third opinion if you have to.....trust your gut instinct on this one...pardon the pun!'
Good luck....love and prayers.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.