Tenesmus blows chunks -- one of my biggest problem symptoms during my first ride on the Crohn's-go-round. Ack.
Prednisone sucks, but if my experience tells me anything, they'll probably put you back on it. It's not unusual for things to get grumpy when you finally go off the stuff. Hopefully they start you back on a small dose and just taper it a little longer.
One of the best investments I ever made was baby wipes. And now Cottonelle makes these ones that you can flush. They smell fresh and clean, and I keep a box on the back of the toilet at all times. Even though I'm not having CD problems at the moment, when it's that time of the month, it's great not to have to feel all funky and nasty. On really hot days, I can sort of wash up with them. After a BM, if I still feel funky, they fix it right up. AND, what's best of all, the package they come in doesn't let them all pull up in a huge chunk like others. Nice and one at a time. And no pinching fingers getting a fresh pile of them going, either. These things are awesome. I got them at Walgreens for like 2.50 or something.
Also -- spoil yourself a little. Get a detachable shower head. Not to be indelicate, when you're in the shower, you can take the shower head and use it to make sure things get good and cleaned out. And get some shower gel that you really like. I got some Caress -- one is Japanese and the other is Morrocan, and they're really heavy on the moisturizers -- plus not too expensive. If you wanna go even cheaper, the Caress that smells like Orchids is really good, too. I've found that it does my mental state wonders when I feel and smell clean.
You are right on about the tenesmus. A real pain in the a##, hahaha! Anyway, I agree that the first step will probably be prednisone until they get this all figured out. I will actually be glad to be back on it because even with all the sucky side effects I still felt a hell of a lot better and had so much energy. Right now, I could sleep for days and still feel tired. Evidently, either I am not absorbing the b-12 or I am not taking enough cause I feel completely drained.
As far the other tips, I am already on to all those things. Baby wipes are a crohnies best friend, I even keep some in my purse and I use them religously. The hand held shower is a real blessing. I can't imagine life without it. It washes all the downtown parts quite nicely. And my favorite body wash is Dove Energy Glow. I use both the wash and the lotion and my skin is silky soft. As for the downtown area, I use Summer's Eve for sensitive skin, it smells great and is non-irritating.
Thanks to everyone for replying and please keep them coming. I need all the suggestions, thoughts, and support I can get. You guys are really the only ones I can talk to about this and ya'll REALLY just get it.