Newly Diagnosed with Moderate Crohn's

Hi, I am just newly diagnosed with moderate Crohn's on Pentasa and Endocort. Does anyone know if this can be resolved with just these two drugs, as well as a top doctor that specializes with Crohn's in the Long Island, NYC area?

I was just dx this summer with CD and this month with Lupus. I have to tell you. I did entocort twice, Lialda ( had to get off due to horrible bloating) , colozal, nexium ( now using prevacid ) and am still having problems. I am also on plaquinil and predisone for the lupus. I dont know how people get 2 drugs to do the trick.

Hi Nikki So glad your here with us and welcome it is great to not be alone. I am on Remicade ,Imurun ,and Prednisone .My CD was severe .Never took the drugs you are on but lots of people here have . Hope they are making you feel better some drugs seem to take awhile to kick in not sure about the ones you are taking .lol gail

Hi Nikki:

I have been on both these medications and yes, for some people, these two meds can do the trick and get the inflammation under control. Here's the thing. Your doctor relies on you to be an accurate reporter of how things are going. It is really important that you begin to monitor your symptoms and get to understand how this disease affects you.

This disease really manifests itself differently from one individual to another so our GIs and GPs really rely on us to become the experts in ourselves. They are the experts in crohn's but we have to be the experts in how it affects us.

You might want to set up a calendar on your computer or -- on your wall -- and make note of when you get symptoms, what they are and how they relate to what 's going on in your life and what you are eating. A food diary can be a really useful tool in the initial stages to help guide you. The more you pay attention and note down what's going on, the better prepared you will be to talk knowledgably with your GI when you find her/him.

Welcome to the forum and good luck on your journey.