Going to Doc WED. Please help me with questions for him... I have CD with constipation not D

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Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 9/3/2007 8:09 AM (GMT -7)   
Okay heres the scoop.
Im 28 diagnosed with CD 2 years ago. My only symptom was Bowel obstruction!!
I did pred which helped alot but not worth the side effects. Asacol and entocort did nothing for me. Six months after diagnosis I begged for flagyl based on some research on the internet. Flagyl put me into remission for over a year! I thought I was cured until now... Ive been living with a partial bowel obstruction foe 4 weeks now, I see my doc wed (hes been on vacvation).
If I am responsive to antibiotics, then I would like to try one of these heavy hitting antibiotic regimines. Has anyone else outthere done this? What meds were you on? and did it help?
Has anyone tried this?

RMAT (Rifabutin and macrolide antibiotic therapy) is an antibiotic "cocktail" consisting of Mycobutin (rifabutin) and Biaxin (clarithromycin). Along with the antibiotics, we also prescribe probiotics (good bacteria) to maintain the intestinal flora. (Note: Some researchers are also using clofazimine.) 

Regular Member

Date Joined May 2007
Total Posts : 150
   Posted 9/4/2007 8:30 PM (GMT -7)   
Hi redspot321,

I am sorry to say that I have no suggestions for you regarding your question but I did want to wish you luck tomorrow at the doctors. Most of us crohnies suffer from D (myself included) instead of C and I think that maybe is why you haven't gotten any responses. I hate to see someone ask for help and not get any replies. I know mine isn't really helpful but I just wanted you to know that I am thinking of you and hope you start feeling better soon. Try to have a list of questions and some printouts about the therapy you are interested in with you when you see the dr so you don't forget anything. Remember to speak up, you are the one in control of your health and the final decisions are always yours to make. Let us know how it goes.
CD since 10/2005
Asacol 2 pills 3 times daily
 Imuran 75 mg once daily
Prednisone 40 mgs daily; I am on a short dose this time, thank goodness.
40 mgs for week 1, 30 mgs for week 2, 20 mgs for week 3, then 10 mgs for week 4 (done on 8/22).
 Lomotil as needed for cramps and D
B-12 supplement 1 mg daily
Levoxyl (Thyroid)
New Orleans, La, US

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