After a long year of fighting (what we thought was) c.difficile infection I now have Crohn's disease following a colonoscopy that revealed a very inflammed terminal ileum and valve with crpyts and prominent active inflammation in lamina propria. I was put on pentasa and entocort but now what? Do I need an immunmodulators? How do I know when to suggest to the doc we need to escalate treatment? I am concerned about
6mp and methotrexate, prednisone, dexamethasone having first hand experience with my daughter who fought leukemia for 3 1/2 years with these drugs. I have seen what a low white blood cell count can do How do fistulas form and why do they form --is it from undertreated crohns??
Hoping someone can help me answer questions and calm my nerves down. My 4 year old is starting prek tomorrow...more germs!!