Long term remission....RMAT

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 9/4/2007 8:11 AM (GMT -7)   
Hi everyone, Has anyone out here benifited from antibiotics?
I used flagyl 1 year ago for a 8 month remission and was wondering if anyone out the has had the same results. Im concerned the frequent use of antibiotics will cause a bug to become resistant.
 Has anyone tried RMAT treatment? These studies are 7 yerars old....

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 9/4/2007 8:20 AM (GMT -7)   
Flagyl and Cipro always helped me. I've been on Flagyl for over a year at a time. The only issue I know of is that long term use may cause neuropathies. I had tingling in my hands and was taken off immediately.
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 9/4/2007 8:42 AM (GMT -7)   
I have never had anything but bad luck with antibiotics. I take them and then have D for Weeks even after I get off them. They also cause my appetie to completley dissapear. Antibiotics for me=BAD!!
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 165lbs). On HUMIRA, Prednisone, Levsin

Regular Member

Date Joined Oct 2006
Total Posts : 367
   Posted 9/4/2007 3:08 PM (GMT -7)   
I've responded to a Flagyl/Leviquin combo on several occasions. But right now I am on Xifaxan, which is also an antibiotic. In fact, antibiotics are the only thing that have worked well enough for me to string together months of remission at a time. Pentasa, Asacol, Entocort--those only made me feel slightly better. The dr. said I could stay on X long term. I hope so, because it's on to the big guns if I can't.

Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 9/4/2007 3:28 PM (GMT -7)   
LETS hear more about Xifaxan :-) :-) :-) :-)
 I just googled it and it seems like a CD wonder drug! Anyone out there with negitive experiences?
How has Xifaxan worked for you?

Veteran Member

Date Joined Nov 2005
Total Posts : 722
   Posted 9/4/2007 5:07 PM (GMT -7)   
It did not help me at all but I don't think it would since I only have perianal crohn's. The DR. should probably not have even given it to me and I'm not sure why he did......
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 1:43 AM (GMT -7)
There are a total of 2,905,646 posts in 318,876 threads.
View Active Threads

Who's Online
This forum has 158234 registered members. Please welcome our newest member, skylav08.
200 Guest(s), 4 Registered Member(s) are currently online.  Details
Gemlin, Girlie, 142, Labradorite