Sorry you are having such a hard time. As others have mentioned hair loss can occur for a lot of reasons-- poor nutrition (or just not obsorbing the good things you eat) and some meds.
I know you never want to take pred again and I understand the feeling, but often it is the only thing that works in the short term. Plus since it is generic it is one of the cheaper options too. If I were you, I'd consider that again just to get through life and then when you can get on some form of insurance look into a different treatment that will allow you to stay healthy longterm. Usually you have to start with pred to get relief and then start something like 6mp or remicade to maintain your health. You're right, if you just start pred and then taper w/o maintenance meds you just get sick again.
I don't think that anyone was trying to hurt your feelings, but it is hard to offer help when you can't afford treatment and don't want to take the affordable drug that is out there. But really sometimes posting helps just to let you vent even if the rest of us can't really help.
I hope you can find something that will work to keep you out of the hospital (and in your apartment). Don't worry about
the hair thing, it won't last. Focus on getting your health in control and that will take care of itself.
Currently in remission!
Post Edited (inflamed) : 9/5/2007 3:43:49 PM (GMT-6)