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SOME DOCTORS REALLY ARE STUPID

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Crohn's Disease
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Xx Claire xX
Regular Member
Joined : Mar 2005
Posts : 94
Posted 9/5/2007 7:37 AM (GMT -7)
hello everyone,

havnt posted for a very long time. Hope everyones doing ok.

Its been 10 months since my surgery and i thought I would get through uni without problems....im not one of the lucky ones.

Iv been having lots of D for a while a cramps etc so went to my gp who did a rutine blood test to see if everythin was ok, this was 3 weeks ok, she rang me a week later to tell me everything was ok with the results. then she got me into my consultant quickly incase i was having a flare. When i got there he didnt have my recent blood test results to look at so couldnt tell if i was having a flare or not. he said he wud right a letter to my gp about new meds and find these results. Then i get a call today from gp telling me tht my consultants found my results and there not normal, really high and tht my crohns is back? .......is he looking at the same results? how can my Gp tell me all the results are normal and my consultant tell me there ski high and my crohns is back! somethings not right and t to top it all off he wants me on the steroids again! i feel fine atm no cramps for a while and im wondering if hes looking at the right results! it worries me if these doctors are actually communicating with each other and know what there doing, Im going to do all i can to avoid going bk on the steroids even tho my doc has said its for the best i cant face it again! my joints and bones have suffered so much from the steroids. Anyone else had similar problems! xxxx

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Mormor Vicky
Veteran Member
Joined : Mar 2007
Posts : 684
Posted 9/5/2007 9:18 AM (GMT -7)
Claire, I'm so sorry you're having problems with your doctors. Get into the habit of asking for copies of your test/blood results especially since this disease is chronic. It also gives you a certain amount of power/control over this disease. You have a right to copies of all items in your chart. Also try to learn to interpret them. It's possible your GP was only looking at certain items and your GI was looking at others. I'm not sure how they could misinterpret them but I guess anything is possible.

I always get copies of blood tests and acessments my doctors make.
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CrohnieToo
Veteran Member
Joined : May 2003
Posts : 9448
Posted 9/6/2007 5:52 AM (GMT -7)
I second getting copies of your test results. You can go to

http://www.bloodbook.com/test-result.html

http://my.webmd.com/hw/index/index-test-topics-A.asp

http://labtestsonline.org/

to help you understand what the results might indicate.

Basically, most blood test results include your level, plus a reference range. These URLs will offer explanations of what a higher or lower than normal result might indicate.
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njmom
Veteran Member
Joined : Apr 2006
Posts : 1885
Posted 9/11/2007 9:53 PM (GMT -7)
Thanks, C2 for the great websites!

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gachrons
Veteran Member
Joined : Mar 2007
Posts : 4527
Posted 9/12/2007 5:29 AM (GMT -7)
Hi I can understand that you would be worried about the blood results and I would be asking what the mix up was about so it doesn't happen again. You could perhaps ask for another test to be done. So what are you planning on doing if you don't go the pred. road? After having surgery so few months ago I am guessing your Dr. wants to be aggressive with your treatment. Hope you get things straitened out soon when do you see your GI next to discuss all this? Best Wishes lol gail
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BullfrogKen
Veteran Member
Joined : Nov 2004
Posts : 1351
Posted 9/12/2007 11:25 AM (GMT -7)
I'd not want to take Prednisone if I wasn't having symptoms, or was shown exactly how I was suffering damage. I'd be adamant and argue the point if they failed to show me why.


What are you taking for a maintenance drugs? Is it still the Pentasa and Imuran?
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