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Xx Claire xX
Regular Member

Date Joined Mar 2005
Total Posts : 94
   Posted 9/5/2007 7:37 AM (GMT -7)   
hello everyone,
havnt posted for a very long time. Hope everyones doing ok.
Its been 10 months since my surgery and i thought I would get through uni without not one of the lucky ones.
Iv been having lots of D for a while a cramps etc so went to my gp who did a rutine blood test to see if everythin was ok, this was 3 weeks ok, she rang me a week later to tell me everything was ok with the results. then she got me into my consultant quickly incase i was having a flare. When i got there he didnt have my recent blood test results to look at so couldnt tell if i was having a flare or not. he said he wud right a letter to my gp about new meds and find these results. Then i get a call today from gp telling me tht my consultants found my results and there not normal, really high and tht my crohns is back? he looking at the same results? how can my Gp tell me all the results are normal and my consultant tell me there ski high and my crohns is back! somethings not right and t to top it all off he wants me on the steroids again! i feel fine atm no cramps for a while and im wondering if hes looking at the right results! it worries me if these doctors are actually communicating with each other and know what there doing, Im going to do all i can to avoid going bk on the steroids even tho my doc has said its for the best i cant face it again! my joints and bones have suffered so much from the steroids. Anyone else had similar problems! xxxx
Claire, 17
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
Small bowel resection october 2006
Currently in remission .....
Life is what you make it!!!
Is the glass half empty or half full.......

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 9/5/2007 9:18 AM (GMT -7)   
Claire, I'm so sorry you're having problems with your doctors. Get into the habit of asking for copies of your test/blood results especially since this disease is chronic. It also gives you a certain amount of power/control over this disease. You have a right to copies of all items in your chart. Also try to learn to interpret them. It's possible your GP was only looking at certain items and your GI was looking at others. I'm not sure how they could misinterpret them but I guess anything is possible.

I always get copies of blood tests and acessments my doctors make.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 9/6/2007 5:52 AM (GMT -7)   
I second getting copies of your test results. You can go to

to help you understand what the results might indicate.

Basically, most blood test results include your level, plus a reference range. These URLs will offer explanations of what a higher or lower than normal result might indicate.

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 9/11/2007 9:53 PM (GMT -7)   
Thanks, C2 for the great websites!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/12/2007 5:29 AM (GMT -7)   
Hi I can understand that you would be worried about the blood results and I would be asking what the mix up was about so it doesn't happen again. You could perhaps ask for another test to be done. So what are you planning on doing if you don't go the pred. road? After having surgery so few months ago I am guessing your Dr. wants to be aggressive with your treatment. Hope you get things straitened out soon when do you see your GI next to discuss all this? Best Wishes lol gail

Veteran Member

Date Joined Nov 2004
Total Posts : 1351
   Posted 9/12/2007 11:25 AM (GMT -7)   
I'd not want to take Prednisone if I wasn't having symptoms, or was shown exactly how I was suffering damage. I'd be adamant and argue the point if they failed to show me why.

What are you taking for a maintenance drugs? Is it still the Pentasa and Imuran?
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