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Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 9/5/2007 9:44 AM (GMT -7)   
I'm not sure how to write the plural of fistula so I put both.
I've only had one fistula and it was to my bladder.  My daughter had one by her rectum and an abcess from one behind her vagina.  (She walked like she had just gotten off a horse sad    Poor thing)  I'm just wondering where then can appear at?  Can they appear through your abdomin or your butt cheek?  I know they can appear to your bladder, vagina, and through the skin but I haven't heard of anyone having them other places.  Just curious.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Veteran Member

Date Joined Nov 2005
Total Posts : 722
   Posted 9/5/2007 10:04 AM (GMT -7)   
Mine appear out to my butt cheek and they start in the rectum ( in the perianal area.)I believe you can get them anywhere though,including stomach and intestines.....
I am very familiar with the horse walk-no fun!
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

Regular Member

Date Joined Jun 2007
Total Posts : 155
   Posted 9/5/2007 11:53 AM (GMT -7)   
Mine is from the rectum to the outside skin right above my butt-hole. I have heard the same as ginger, they can pretty much appear anywhere they decide and connect to whatever they like. They are such a pain!
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...

Regular Member

Date Joined May 2007
Total Posts : 150
   Posted 9/5/2007 1:16 PM (GMT -7)   

Hi Vicky,

I don't have any personal experience with fistulas but my mom who had CD had them. Most of them were around the rectum but two burst through her appendectomy scar. As painful as the rectal ones were, I think she felt the ones on her stomach were the worst. She had to tape 4X4 gauze over the area to catch the liquid bm that came out of them and the tape tore her skin apart not to mention what the acids in the bm did to it. As far as I know, they can indeed break out anywhere. This was and is my biggest fear with CD.

CD since 10/2005
Asacol 2 pills 3 times daily
 Imuran 75 mg once daily
Prednisone 40 mgs daily; I am on a short dose this time, thank goodness.
40 mgs for week 1, 30 mgs for week 2, 20 mgs for week 3, then 10 mgs for week 4 (done on 8/22).
 Lomotil as needed for cramps and D
B-12 supplement 1 mg daily
Levoxyl (Thyroid)
New Orleans, La, US

gemini kiwi
Veteran Member

Date Joined Nov 2006
Total Posts : 1136
   Posted 9/5/2007 1:26 PM (GMT -7)   
Which ever way you spell it they must be one of the most vile manifestations of this disease. Some days its hard to read about the suffering they cause.

Veteran Member

Date Joined Oct 2006
Total Posts : 2082
   Posted 9/5/2007 4:39 PM (GMT -7)   
I remember someone on another forum that had one tunnel into her hip joint, which was described as excruciatingly painful (if memory serves). My experience has been vaginal only. I'm hoping I don't get any more.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 9/5/2007 8:50 PM (GMT -7)   
The plural of fistula is fistulae.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

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