My doctor just gave me the link for this page, and he thinks that talking with others will help. I was diagnosed with CD and UC in March of this year, and spend 8 days shortly after in the hospital to control a flareup.
I am just about to taper off the predisone being on 60mg was no fun at all. I'm currently on Asacol, 1600 mg a day. Oh yeah and how could I forget Remicade, just had my first eight week infusion.
I've never had a problem with Remicade, until this first infusion. My hair started to fall out. I've been dealing with thinning hair for some time, but to have it fall out is a complete and different story. Not only is it embarrassing, but it's a reminder other than when the EOB comes in and it lists that I'm going through "chemotherapy".
I'm happy that the flareups have settled down, but the explosiveness of the disease exists at times, it doesn't matter at which end.
Psychologically, the past week was been extremely rough and friends and family understand but they don't UNDERSTAND completely.