who is going to win the super bowl this year?
Kansas City Chiefs - 20.0% - 1 votes
Kansas City Chiefs - 0.0% - 0 votes
Kansas City Chiefs - 20.0% - 1 votes
Kansas City Chiefs - 20.0% - 1 votes
Kansas City Chiefs - 20.0% - 1 votes
Kansas City Chiefs - 20.0% - 1 votes
Glad Bag
Veteran Member
Joined : Mar 2007
Posts : 699
Posted 9/7/2007 12:03 PM (GMT -8)
i have been resurrected.....just wanted to say hello to everyone and let you know i am back.....i had to do some self-discovery for a while
anyway, wanted to say i am feeling pretty good, but it can be so frustrating dealing with this, i have been great since my surgery to get a temp ileostomy, however, I am still having fistula related problems....
i am starting to think I should have had a total colectomy instead of messing with the idea of this temporary solution....now i think i might just keep this ostomy forever instead of having it reversed?
I know this isn't the ostomy forum, but have any of you others had a temp ileostomy, and then ended up keeping it instead of getting it reversed?
Posted 9/7/2007 12:23 PM (GMT -8)
They finally let you back..; )..
I, myself do not have an ostomy(yet)..but I read that it is kinda common for people just to keep it after a while....my ? to you..is it really that bad?.. I read the ostomy forum time to time and most people on there do not seem to mind..I mean I'm sure they don't like it..but it seems like coming to terms with having it is the worst part..not the daily living life with it..
when are you supposed to be able to have it reversed?..
Welcome back!
Posted 9/7/2007 1:09 PM (GMT -8)
I think one person on here has done that but not sure who. Since my reversal 9 weeks ago I still have my days where I wish I had the ostomy still, but I dont miss the bag, the abscess drain etc. Darn peritonitis from the abscess I had would not have gotten better without surgery nor would the abscess. My stoma never healed right causing feces to seep under my skin. Infectin wise I am free now yay...not to get my bowels to act normal...somedays I have D up to 8 times other days I am boated and wish I could go...finally go after a while but its uncomfortable
mama2jmt
Regular Member
Joined : Mar 2007
Posts : 301
Posted 9/7/2007 1:33 PM (GMT -8)
Hi Glad,welcome back!Sorry to hear that you are having fistula problems,I hope you feel better soon.Take care.
dunny2
Veteran Member
Joined : Jan 2007
Posts : 3200
Posted 9/7/2007 3:01 PM (GMT -8)
The person you need to talk to is Judy89. She has an ostomy and is hanging onto it. Good luck.
JudyK89
Veteran Member
Joined : Dec 2006
Posts : 1986
Posted 9/7/2007 3:17 PM (GMT -8)
My ostomy is still considered temporary because I still have my rectum. They keep electing not to remove it because my surgeries are too complicated since I've had so many.
Anyway, to answer your question, yes, my ostomy was supposed to be temporary, 17 years ago. I've had 5 resections since then, and they recently moved it to the right side, and removed my entire colon, so it's now officially an ileostomy. My surgeon asked me if I ever thought about having it reconnected and I had a panic attack, lol. Please don't let me wake up with it reconnected. I have a life now. I can work, play, walk, run, ride, do anything I want to do.
I had a real hard time dealing with it at first, and when I asked my surgeon when I was going to be reconnected, he said it would be senseless as I'd have to keep having it done and reversed. I felt cheated because he told me it was temporary. As time went on, I realized how nice it was not being chained to a bathroom, or embarassed at work, or in the mall. This is much easier to deal with. Accidents still happen, but once you get the hang of it, they're pretty rare.
The decision is yours, you can always opt to not have it reversed. My surgeon is a little worried about still having a rectum, I guess the risk of cancer is higher, but I have it checked and biopsied any time they have to put me under for another test, and no changes after 17 years.
gemini kiwi
Veteran Member
Joined : Nov 2006
Posts : 1136
Posted 9/7/2007 3:45 PM (GMT -8)
Glad welcome back, we've all been so Poll deprived in your absence.
Tess
Glad Bag
Veteran Member
Joined : Mar 2007
Posts : 699
Posted 9/7/2007 3:48 PM (GMT -8)
thanks people.....
Danielle....actually, it is not that bad, it is great with the ostomy....
except for not being able to swim in my sexy speedos anymore! (yeah, i used to do it all the time) as if....
Judy....now i remember your story......
thanks for the wisdom...
Glad Bag
Veteran Member
Joined : Mar 2007
Posts : 699
Posted 9/7/2007 3:49 PM (GMT -8)
jennifer.....
good to see you again too.... you know who my favorite member is, stop acting like you hardly know me
Posted 9/7/2007 4:39 PM (GMT -8)
Welcome back Glad... So I see your a St Louis Ram's fan, right? Go COWBOYS!!!!!
Posted 9/8/2007 7:18 AM (GMT -8)
Hey glad bag,
We sure have missed your humor around here! No experience with ostomies or any other Crohn's surgeries so far! Thank goodness! But on another, lighter note.....GO, NEW ORLEANS SAINTS, GO! TO THE SUPERBOWL!!!!!!!!!!!
ski bum
Regular Member
Joined : Jan 2007
Posts : 451
Posted 9/8/2007 9:01 AM (GMT -8)
Hi Glad Bag. I don't have an osteomy, but just wanted to welcome you back. Welcome back!!
MishBall2
Regular Member
Joined : Apr 2007
Posts : 345
Posted 9/10/2007 11:51 AM (GMT -8)
Pats, as usual
Lauren21
Regular Member
Joined : Jan 2007
Posts : 200
Posted 9/10/2007 12:25 PM (GMT -8)
Welcome back GladBag! Missed ya!
Sugarmarie
Veteran Member
Joined : Jul 2003
Posts : 1267
Posted 9/10/2007 3:38 PM (GMT -8)
Welcome back I missed your post.
hugs,sm
KitKatBaker
Veteran Member
Joined : Feb 2005
Posts : 1146
Posted 9/10/2007 6:14 PM (GMT -8)
Jennifer~
Are you sure the Saints are even playing this year???????
Go Colts!
Posted 9/10/2007 6:19 PM (GMT -8)
KitKatBaker said...
Jennifer~
Are you sure the Saints are even playing this year???????
Go Colts!
D@#$ KitKat, that is HARSH! It was only the first "real" game of the season. Give em a break.....