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Crohn's Disease
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Ann Ireland
Veteran Member
Joined : Apr 2006
Posts : 511
Posted 9/7/2007 2:36 PM (GMT -6)
after almost 3 yrs of Hell on EArth the famous Professor Graham Hughes in London has diagnosed me with Sjogren's Syndrome and 'sticky blood' I am to start injecting self with heparin. He noticed my muscle wasting but could not make a suggestion for that or the wild flaring up with violent heat.
He said he could help me get much better than this and that he didnt think I'd be so sick as this if treated.
I have a long way to go I feel with the pos on the DAT for Parki and the muscle wasting.
He told me that the chorea and dystonia is a rare side effect of sticky blood which he discovered.
He is world known and the lupus site are amazed as some on their site dx'ed by him
xx to all here
ann
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dunny2
Veteran Member
Joined : Jan 2007
Posts : 3200
Posted 9/7/2007 5:14 PM (GMT -6)
Anne, I'm so pleased that at last you have a name for what is ailing you. Sometimes that brings such a sense
of relief, because at last you know you not going nuts, and it's not all in "your head". Best of luck Ann xx
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JudyK89
Veteran Member
Joined : Missing Key Value : en-US, 587 2006
Posts : 1986
Posted 9/7/2007 5:18 PM (GMT -6)
I'm so glad you finally found your answers. Good luck with your treatments and keep us posted.
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