GOOD NEWS

Ann Ireland

Veteran Member

Joined : Apr 2006

Posts : 511

Posted 9/7/2007 2:36 PM (GMT -6)

after almost 3 yrs of Hell on EArth the famous Professor Graham Hughes in London has diagnosed me with Sjogren's Syndrome and 'sticky blood' I am to start injecting self with heparin. He noticed my muscle wasting but could not make a suggestion for that or the wild flaring up with violent heat.
He said he could help me get much better than this and that he didnt think I'd be so sick as this if treated.
I have a long way to go I feel with the pos on the DAT for Parki and the muscle wasting.
He told me that the chorea and dystonia is a rare side effect of sticky blood which he discovered.
He is world known and the lupus site are amazed as some on their site dx'ed by him
xx to all here
ann

dunny2

Veteran Member

Joined : Jan 2007

Posts : 3200

Posted 9/7/2007 5:14 PM (GMT -6)

Anne, I'm so pleased that at last you have a name for what is ailing you. Sometimes that brings such a sense
of relief, because at last you know you not going nuts, and it's not all in "your head". Best of luck Ann xx

JudyK89

Veteran Member

Joined : Missing Key Value : en-US, 587 2006

Posts : 1986

Posted 9/7/2007 5:18 PM (GMT -6)

I'm so glad you finally found your answers. Good luck with your treatments and keep us posted.

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