Son DX with Crohns

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New Member

Date Joined Sep 2007
Total Posts : 19
   Posted 9/8/2007 9:28 PM (GMT -7)   
Hi 20 year old son just found out he has Crohns....cant seem to get it under control...he always has stomach pain...runs low grade fevers...and now has mouth sores.He is taking entocort,6mp,Pentasa,and Acephlis for gerd. He just finished a course of Prednisone.I dont think the regular Gastro guys are any good with I am taking him to Crohns doc in Philly. He is getting discouraged after 5 months of med and still feeling punky. Low grade fever pops up at night...gone in morning. Any advise? Deese

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 9/8/2007 10:20 PM (GMT -7)   
I just wanted to say welcome to HW. You have come to the right place for support, I would encourage your son to join too. It is often a very lonely world for us CD'ers when we feel like no one else can truly understand. I am sorry to hear that he is sick. I hope that the new docs can help. I am fairly new to this and have yet to go to the "big guns". But maybe it is time to look into the stronger drugs. My guess is the doctors are taking the approach to see if the drugs they have him on now will help him. I have heard some of them can take several months to kick in. I know that someone will be along with better information. I just wanted to say Welcome.
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/9/2007 2:54 AM (GMT -7)   
Hi Deese,
Welcome to Healing Well. I agree with Heather this is a great place for support. A good place
to vent. Remember one thing your son is not alone. You can always ask questions and so one should
be able to help.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 9/9/2007 7:16 AM (GMT -7)   
try dietary changes. this worked for me. i did the maker's diet. i feel better now than i ever did in the 14 or so years taking meds. others here have done the specific carbohydrate diet. there seems to be something to all this. check it out. you have to eat any way...
Crazy Harry

Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon

anna paradise
New Member

Date Joined Sep 2007
Total Posts : 9
   Posted 9/9/2007 11:34 AM (GMT -7)   
my 10 year old son just got diagnosed with chrohn's colitis. As a parent, i wish it had been me instead. hang in there

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/9/2007 12:48 PM (GMT -7)   
Both probiotics and fibre supplements can be very GI told me to take fibre supplements daily for the rest of my life, it's been well worth it so far and the probiotics (a good one) are a must since IBDers tend to have bacterial over-growth which tends to exacerbate IBD symptoms.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Member

Date Joined Sep 2007
Total Posts : 19
   Posted 9/9/2007 6:14 PM (GMT -7)   
Hi...what are probiotics??? Deese

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 9/9/2007 6:25 PM (GMT -7)   
Here is some information on probiotics, you'll need to copy the link into a search engine. Myself I take a probiotics and digestive enzyme at every meal, Garden of life makes some good ones.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

Post Edited (FinalMacGyver) : 9/9/2007 7:28:27 PM (GMT-6)

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 9/9/2007 7:05 PM (GMT -7)   
Welcome,we are glad to have and I am sorry that your son has this (DD)but you have come to the right place.I also agree that your son would benifite from the site as well.This disease is a induvisual disase,and we all react differently to our meds and food as well.I would like to say this if food start's causing him alot of pain I would start a food diary every day and put what he eats down and that way when he eat's and it bothers him than he will know to stay away from it.This can also be used for his meds if one of his meds make him sick then that way he can take this and show his GI so that your sons and his GI can come up with other treatments.I am how ever glade that you are getting a secound opinin.Just remember you are welcome any time.

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 9/9/2007 7:56 PM (GMT -7)   
I suggest the Maker's Diet and probiotics too. It is helping me more than any meds and a resection surgery.
Probiotics are good microorganisms that helps get rid of bad bacteria in the intestines. They also boosts the immune system, greatly help with digestion, and strengthen the digestive system. They are a MUST for every person with Crohn's Disease.
The Maker's Diet is basically about eating natural foods, prepared in a less processed way.
Meats, veggies, fruits, yogurts, sprouted or fermented grains, sourdough bread, natural butters and oils (olive oil, coconut oil), honey instead of sugar, etc.
No fast food, processed food, preservatives, white flours, sugar.
Hope your son feels better soon.

Post Edited (Roni) : 9/9/2007 9:01:36 PM (GMT-6)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/10/2007 5:18 AM (GMT -7)   
Hi Welcome to HW glad you have joined us and great to see a family member that cares so much about there son. I follow the low roughage diet which helps me and my GI works with me to get me on the meds that releave my symnptoms .CD is a sometimes self defeating disease but with great support and trying different meds and diets we can help ouselves.I also have learned to not push myself too much and to find and enjoy the things that bring me happiness. Hope your son can get the meds and a diet plan that works best for him .It must be hard for those that were DX young but this place is very helpful we need to know about this disease and learn about it so we can help ourselves and know about complications so that they can be treated early. lol gail

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 9/10/2007 5:45 AM (GMT -7)   
Hi Deese and welcome! My son was recently diagnosed, too. It is rough to see them hurting... as anna said, I wish it had been me instead. If you are like us, the docs at Children's said "no dietary restrictions" to my son only minutes after he was told about his CD.

Since that day in June I have learned soooo much from visiting this forum! I am currently reading "The Maker's Diet" too and beginning to incorporate the program. My son is also taking probiotics and digestive enzymes. Praise God, something is working!

Oh! Do you know if your son might be anemic? That might be the reason he's still feeling punky. Many, if not most CD patients are anemic and take iron and vitamin C to facilitate iron uptake.

Good luck to you and I hope your son soon experiences relief. If you try these alternatives, don't be surprised if your son's doc doesn't get it. Our doc doesn't, and that's okay. I don't expect them to understand a more holistic approach.

Mother to 15 year old boy just diagnosed in June, 2007. Taking Asacol, just finished Prednisone, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.

New Member

Date Joined Sep 2007
Total Posts : 19
   Posted 9/10/2007 2:39 PM (GMT -7)   
YES!!! They told me does not matter what you eat.....but I am thinking yes it does. Emom are you talking about Childrens in Philly? My nephew goes their for his Crohns but my son is over 18...after that you have to go the University of Penn. I am going to ask the Doc about probiotics and such. At this point anything taht works!!! Deese
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