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I saw my GI today

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Crohn's Disease
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Posted 9/10/2007 6:45 PM (GMT -7)
hello everyone,

I saw my GI today.I explain to him that I was experiencing pain again since I reduce the entocort.We decided to try Imuran and increase the entocort back tp 9mg.

He wanted me to take prednisone and I said nop. he also said that if the imuran doesn't work that we should try remicade. correct me if  I am wrong but isn t remicade for severe croh`ns

I was just dx in july and at that time he said that I had a mild case of crohn`s disease ...

after reading all the side effect of Imuran, I am sceard to try it

I am not sure anymore if I made the correct decision .

anyway I do have a couple of question

for those who are taking imuran did you have any side effect and if so, what were your side effect

for those who tried imuran and remicade witch one did you prefer

to everyone what are your opnion ...should I start taking Imuran or remicade

I know it`s my decision but your opinion is very important to me

thank you

Jackie

Posted 9/10/2007 9:35 PM (GMT -7)
I started Imuran and Remicade within 4 days of one another almost 3 years ago. I was diagnosed with mild CD of the terminal ileum. However, the joint issues I suffered as a result of the CD are what got me on the Imuran-Remicade combo. The two worked great. My gut went into almost immediate remission and the joints improved a lot soon after.

Unfortuantely, Remicade stopped working for me the last couple of months and I will be switching over to Humira. I still take Imuran.

I was never afraid to take either medication. I did my homework and realized that if I wanted to ever be able to walk on my own that something needed to be done and that at that point Remicade and Imuran were my best options. I think the big question is about quality of life. You can continue on your current meds which don't seem to be helping. You can try other less aggressive meds like Asacol or Pentasa. Or you can go for Imuran or Remicade. Unfortunately only you can accurately weigh you decisions.

BTW, I have never had any side effects from Imuran. I do make sure I take it on a FULL stomach because it is notorious for causing nausea.

I hope you get some relief soon.
Posted 9/11/2007 2:58 AM (GMT -7)
Hi Jackie,
Remicade is for mild to sever Crohns. I am doing both Remicade and Imuran. These to drugs
work together better.
Posted 9/11/2007 4:21 AM (GMT -7)
Hi Jackie I am on both drugs and started them around the same time I also eat low roughage diet My reasons for starting the Remicade was fistula related ,I also had a large abcesss and partial blockage so I opted for the Rem. I have had not much side effects but the Prednisone gives me some. I do have a few days of body pain but not often .I try not to be scared of these drugs because my decision was made .Some people do good on other drugs it depends how things are working with other stuff maybe. I will say I do not have pain now and that is good the Rem. healed my fistula so all in all I feel I made a good decision for me .Let us know what you decide. lol gail
Posted 9/11/2007 6:30 PM (GMT -7)

thank you gachon, teddybearweiser and ides for ur response.I decided to try imuran and see what 's going to happen . It is my first day on it but I only take 50 mg until I do the blood test and then the GI will call me to tell me if I should go ahead and take the 250 mg ...hopefully it will work. I am just waiting for the entocort to kick in ....I was on 3mg for a few days and then the GI said to increase it to 9  mg ....do u guys know how long it will take before it kicks in again ( I was tappering the entocort every to 2 week but I only decrease to 3 mg for 4days) ....I am in so much pain right now...I don't know what to do

thank you

Jackie

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