i havent been here in a really really long time and since i flared up ive missed this place so much. its the only place i have found where people truly understand and i miss it very much.
i have been on remicade since feb 2004 and it was working so well. then a few months ago it gradually stopped working. my ct showed moderate to severe crohns again, like it did when i was first dx'ed. i have been on prednisone 40mg for about 3 months now and its killing me. i have every side effect and its just awful.
SOOOOO my GI decided to double my dose of remicade and to redo the induction doses. has this happened to anyone else? and if so was it effective? im so scared that its not going to help becasue what then? its the only thing that i have either tolerated or has helped. im just worried about it and hope someone can tell me that changing dosing or schedule has helped them.
thanks very much and hello to everybody, especially those i havent seen in quite awhile!