Not a Candidate For surgury ........Pyoderma Related

 Even though they want to do surgury I have seen 3 docs and gi's and its a no go ......

They are worried the sores that erupt from the PG will come out in the organs .......what the hades do I do now ..........MY Family doc and GI are definitely on the NO go list as they have seen what the sores do on outside

 Fed up and have no clue what lies ahead ....constant D am down to 98 lbs again and not making toilet every time .....Jeesh .....its a WONDERFUL life .....BUT hey I am alive............RIGHT

Thanks for letting me vent all ....I am standing beside myself ....and toilet lol

Hope all are having a good day ......gotta laugh or I would be balling face off ....D it all

LYN

sorry you are having isses with the PG which is holding Sx up. Do they have any meds that can help the PG enough so you can have Sx?What does your doc have you on to help the CD now since you are having issues?

Hi Lyn,
What about Humira or Remicade. Has your doctor talked to you about either of these 2 drugs.
TBW

I have had this D PG for about 14 yrs and there is nothing to control it
I am the worst case they have seen and I have almost lost limbs with it
I know there are others out there that have this and for me it has progressed to the point of no return .......

I am waiting for a real quick answer and approval for Remicade it was sent in and doc is furious not heard back .........
I am soo hoping I get it asap and maybe ( crossing all digits ) that I get it
I dont honestly know if thats the answer to my prob for now but praying it is

I am on CD meds .....ASACOL....and take Pred ....err and still NO weight gain.......
There has to be something better any suggesstions please..... and Pain meds but so sick of having to get up take pain pills to function ya know ........NO Anti D do anything for D and you would figure with Oxycontin 60 mg q 12 h plus Percocets for BT pain......would at least give me a formed stool to a point but as no luck
Last night I had a twinge in tummy bathroom is like 8 ft away never made it all over the place and then I was on the floor in agony ( this is with pain meds .....) Cait was in shower 3 floors up and never heard me yelling but that sweet angel finally did come down and cleaned her mom up .......Silent tears of embarrassment and pride that I have been at least blessed with her and ALL of you ........
I will keep talking I promise I have held too much in as Peter has told me ..........

Thanks again.......

Thanks to all I appreciate your love and concern I honestly do ......LYN.

** also on MTX ....folic acid ......Diazapam ........