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Regular Member

Date Joined Aug 2007
Total Posts : 76
   Posted 9/11/2007 8:42 AM (GMT -7)   
I am facing the possibility of needing an iliostomy or a colostomy wanted to know your stories on how it is to live with a bag. I'm only 30 and would like to re-marry and have another child but it comes to mind who would want to date, marry, or have sex with someone that has a permanent bag of poop attached to them. I've not worn a one-piece swimsuit in ages and I know it sounds petty but I love bikinis and don't want to give them up. The idea of the possibly is extremely depressing me, but I guess if I knew how great life could be with one then maybe I wouldn't feel so bad. So I need to hear all good and bad stories. sad
30 yr. old dx with CD 10 years ago. Currently on folic acid and azulfadine.  Had ileum removed and resection May 2007.  Just started back to work after being off 13 weeks.  Still feeling lousy.  In the process of trying to get approved to start Humira ASAP!!!!  It scares me immensely!!!!  Just started Humira 8/20/07-loading dose of 4 pens (160mg).
Allergic to: Asacol, Pentasa, Imuran, Paxil, Zoloft, Penicilian, Ampicilian
And prednisone does not work for me anymore!!!

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 9/11/2007 9:31 AM (GMT -7)   
I had a temp ostomy and having it reversed I am having D and pain but I had complications with my ostomy surgery. You may want to post on the ostomies forum there are more people there that have had them for a longer time. They may have some tips for you
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

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