Well Im still in the hospital

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Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 9/11/2007 1:55 PM (GMT -7)   
here on my laptop...been here a week...they wont let me go cuz Im still in pain. Had all the tests run and such. He said my colon is eaten up with Crohns and that the right side is atrophyd or something...have no idea what that means
meanwhile my arthritis test come back from PCP and my rh factor is negative and so is my A& A whatever taht means.  she also said my xrays look fine
Im baffled cuz the day I went into have the xrays of my right elbow shoulder and wrist they were hurting REALLY bad!! What gives? I know Im not imagining the pain. I mean she did have a very high sed rate come back of 62 so how is it that bloodwork shows inflammation but the xray doesnt
any clues?? any advice
Im scared of being released from here only to find out I am still going to be in so much pain.
oh and forgot to say, they did my first remicade infusion here in the hospital last night..good eh?

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 9/11/2007 2:40 PM (GMT -7)   
Regarding the extreme pain you were having in your R elbow and wrist and the "Fine" xray: Not all joint problems show up on xray. The minute I complain of severe joint pain and have a "good" xray, my rheumy orders a MRI of the problem area. One time my hip xray showed mild osteoarthritis in my hip which could not possible expain the pain I was having. MRI done the following day revealed avascular necrosis, basically dead bone.

Also, enthesitis, inflammation where the tendon inserts into the bone, can cause severe pain. It does not show up on xray and not always on MRI. Ultrasound imaging can diagnosis this problem. Enthesitis is a diagnostic symptom of the spondylitis group of diseases that people with CD are more prone to get.

I'm sorry you are in the hospital.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/11/2007 3:03 PM (GMT -7)   
Hi songstress,
Sorry to hear that you are in the hospital. I am in the beginning stages of osteoarthritis.
My Rhemy told me.

My prayers are with you. Also sending you a Big Hug.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 9/11/2007 5:26 PM (GMT -7)   
I had horrible joint pain...elbow, knee while on pred. I mean BAD....a 100 mg of demerol through my iv would hardly touch it. Also when my crohns was out of control, I had awful joint pain and inflammation. I had all the arthritis tests too at that time, and everything was negative, so it may just be the crohns......

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 9/11/2007 11:57 PM (GMT -7)   
Thank god for laptops!!What would we do without modern technology. It's nice that you can keep in touch with us even tho u are in hospital...which really stincks!But, better in hospital where they can get to the bottom of things and treat it , than at home in pain and no help. Always trying to look at the silver lining of all too frequent clouds.
Good luck.
Love and prayers , ''
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/12/2007 4:32 AM (GMT -7)   
Hi Glad your getting some good help and it is great you had your Rem in the hospital got that first loading dose done yeh .Hope the Rem kicks in and you get to feeling better soon. Enjoy the rest and the pain meds should help. Are you eating? Keep in touch lol gail
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