Well, I'm on my way to get my loading dose of Humira..

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Regular Member

Date Joined Jun 2007
Total Posts : 86
   Posted 9/12/2007 9:25 AM (GMT -7)   
and I'm super nervous.

It seems like everyone that works at my doc's office is about as sharp as a bowling ball. Yesterday I asked the receptionist what I should bring to my appointment and she said, "Bring all your meds, bring everything." I was like, "Well, the pharmacy gave me ten injections..." and she cut me off and said, "Bring everything you have."

Well, knowing this was incorrect, I called back this morning to talk to one of the nurses before my appointment to see if they wanted me to bring four injections or one. Also, I asked if they had icepacks there, or did I need to bring one. Naturally, I couldn't get a hold of anybody so I had to leave a message. I'm leaving for the appointment in about 15 mins. and I have decided to take four injections (surrounded by an ice pack) in a lunch bag.

My problem with this doctor's office is that I can NEVER get anyone on the phone to call me back, and even thought this guy has been my doctor since May, I have only seen him in person twice and he has never done a physical exam on me even though I have told him several times I have either hemmies or skin tags or SOMETHING happening down there that hurts.

I'm starting to wonder if he really exists or if he's a figment of my imagination. Even today, when I get my Humira, I'm not even going to see him. The nurses are going to do the appointment. So if I have any questions about anything, they will never get answered. Its always, "We'll take a message and have his nurse talk to him and she will call you back." That means if I have a follow up question, its another 24-48 hours until it gets answered....and that's if I'm lucky.

That's why I'm nervous about the Humira. Feel like I'm doing it myself with no help from anyone. Good thing I do a lot of research and don't rely on the docs for answers. :-)

And most importantly, good thing I have you guys. Couldn't get through this without you. Take a bow! cool
Bipolar disorder
Appendectomy Nov '01
Dx Chron's summer '05
Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov

Regular Member

Date Joined Jan 2007
Total Posts : 200
   Posted 9/12/2007 11:14 AM (GMT -7)   
I am doing my loading dose of Humira today, too. I am little nervous but more excited than anything. Be careful about putting an ice pack around the Humira, it's not supposed to be frozen.
My nurse is doing my first injection to, its not something the doctor does. I also have the same problem as you with getting anyone from there to call me back! They told me to bring everything regarding my Humira, too, so I guess I will drag it all in there later!
Good Luck!
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Using Darvocet & Lortab for Pain
Tigan for nausea

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 9/12/2007 11:46 AM (GMT -7)   
Good luck both of you. I had my loading dose done about two weeks ago and i do my own two shots tomorrow. I was nervous as well but I have not felt tthis good since being diagnosed. Hope all works out!!!
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

Veteran Member

Date Joined Feb 2006
Total Posts : 842
   Posted 9/12/2007 12:56 PM (GMT -7)   
I had a follow up with a new GI today, and he ended up having me do the 4 shots of Humira while I was there, even though my insurance is still denying it. The shots really were not that bad, and we didn't ice the area at all, just brought the syringes up to room temperature. Good luck with your injections!
Crohn's Disease for a year and counting
Imuran: 150mg
Remicade: Had a delayed reaction, waiting for Humira approval
Dicyclomine and hyoscamine for intestinal cramping and spasms
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!

Regular Member

Date Joined Jun 2007
Total Posts : 86
   Posted 9/12/2007 1:07 PM (GMT -7)   
Hi all,

Just got back from the docs. Did all four shots myself. It wasn't that bad, but it did burn like hellfire for a few seconds. I'm over it now though. I feel kind of woozy but I think its due to the anxiety and the buildup of worry about the medicine.

The nurse who did the "teaching" was very nice, but it was the same old thing- I'd ask her a question about the medicine and she wouldn't know and then she'd have to go find my doctor and ask him. Even though he was down the hallway from me he never came in to say hello or answer any questions. Its like being in the land of OZ and searching for the wizard. eyes

Hope everybody else is doing well,

Bipolar disorder
Appendectomy Nov '01
Dx Chron's summer '05
Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 9/12/2007 1:21 PM (GMT -7)   
I may be placed on humira soon myself. You think after all I have been through I could give myself a shot but I can't. I can place IVs in animals, draw blood from animals etc. I even helped the home care nurse fish for my vein once the needle was in me. I cant even give myself my B 12 I bring it to my Dr to do for me. I will be working in a medical office so hopefully one of the nurses there will administer it for me, if not my godfathers wife is a nurse (she keeps her license up but do to many allergies incl latex, plus lyme disease, fibro etc she can no longer work...when she was able to she was a pediatric ICU nurse). She will gladly give me the humira if I cannot find someone else to do it for me. Even when I had imitrex my ex husband had to give me the shot I couldnt do it.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

New Member

Date Joined Sep 2007
Total Posts : 7
   Posted 9/12/2007 1:28 PM (GMT -7)   
I have been on humira for abput six month and I really like it. I to was very nrevous the first time but it whent really well.
33 year old female. Married with one sweet little girl.
I was diagnosed with crohn's in 2007. but have been living with for seven years. No meds at this time. Just have surgery about three weeks ago (aug 18, 2007)

New Member

Date Joined Aug 2007
Total Posts : 8
   Posted 9/12/2007 10:00 PM (GMT -7)   
I've been on humira for a while know and yes those first four pens burn like &^%*%. I have since then requested the syringe so I can push it much slower and I like that alot better. not nearly the burn that you get from the pen, plus I leave it sit out for a little bit so its not cold right out of fridge seems to help with some of the bite also.
Diagnosed with Crohn's spring '06
taking-Asacol 4 tabs 3 times a day
Imuran 50mg 1 a day to start
Humira 40ml injection 1 every 2 weeks
Hydrocort @ night -fun stuff
 Prednisone 5mg per day

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/13/2007 5:02 AM (GMT -7)   
Best Wishes glad you managed to get that done and hope it works for a long time to come. lol gail
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