I am newly diagnosed and have been posting for the last 2 weeks since diagnoses. I have tried to read anything I can to learn about
my disease to be educated and make good decisions about
my treatment. I recently learned about
the genetic testing for NOD2/Card 15. The presence of these markers "could" indicate a more aggressive disease in crohn's patients. I know that this is all research at this point and they do not know if this exactly correlates with outcome. I am very interested in finding out if I have this marker and was wondering if anyone else had this testing.
Also the Prometheus testing Anti-CBir 1 test on mine came out 31.1 and the reference value is <21. and this is suppose to be corelated with small bowel fibrostenosing and internal penetrating disease.
So now I am scared about all this and am very interested in getting further markers tested.
Maybe I should choose the remicade based on all this...just afraid of all the side effects. I don't have good luck anyway.