Have not had any genetic testing done but let me offer a word of caution in this area. Even though you may want to have this done to have a better understanding of this disease and how it is going to affect you......genetic testing NOT paid for out of pocket, i.e.; getting your doctor to order it and the insurance company to pay for it is NOT a good idea. It gives your insurance company way tooo much information on you and could backfire on your future insurance claims. They are always looking for pre-existing medical reasons not to pay a claim and God forbid you get in the situtation of losing your insurance, seeking out another insurance company and they have THAT kind of information in their pockets! Proceed with caution.
I did Remicade for over a year with much success until building antibodies to it. Would recommend you keep some Benedryl on hand for infusion days just in case you have a reaction. Also, try and schedule you infusion days on Fridays so if you have flu like side effects for a couple of days, you'll have the weekend for down time. I have recently changed to Humira and so far so good. Good luck to you with your decisions and as always welcome to the board!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Remicade, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain. Lactose Intolerant?
Attitude: When I stand before G-D at the end of my life, I want to be able to say; I used every talent you gave me in a positive way to help others along their way!