forthcoming visit to GI

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Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 9/13/2007 2:40 AM (GMT -7)   
I have an appointment to see my GI in one week, and would like your help as to what to ask him.  I'm currently on 9mg Entocort, and 6 pills of Salofalk.  I'm doing OK in general, but I still have my bad D days.  I think that Entocort has not been my miracle drug (I've been on it for 2 months).  I know I have a stricture in my TI, but last time I saw him he told me that surgery was out of the question at least for now, and to tell you the truth I don't feel that sick, although there are 1-2 days every week when I feel nausea, having a little D etc.
I will have blood tests on Monday, because he wants to see them, and my question is should I tell him to give me more "heavy" drugs? Or since life is OK right now, I should just stick with the current ones?  Oh! I forgot, 4 months ago my blood tests were excellent, but I was still experiencing symptoms.  He told me since blood tests are OK, there is no serious inflammation active.  It could be IBS.  Go figure....
Greek hugs,

Regular Member

Date Joined Mar 2007
Total Posts : 69
   Posted 9/13/2007 4:19 AM (GMT -7)   
I personally would rather be on a maintanence medicine, and get off the entocort. I feel steriods are a last resort, i have been on them numerous times in the past 10 years. The last time i was on enticort for over 6 months and thought it was so much better for me than the old steroids- but it started this blood sugar thing, diabetic swing. I went off and never want to feel crazy like that again. Have a list ready with questions, and ask him what he thinks your options are..

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/13/2007 4:42 AM (GMT -7)   
Hi Christina Not sure what you should do has your Dr. mentioned the bigger meds? I know IBS is no fun I had it for 27 years .I am glad your blood work is doing good .The Entocort might be working and improve things for you as you take it longer but I don't know if it will. Hope you get things worked out with your GI .I seen mine yesterday and we are still weaning me from pred. I have to go slow. I take the bigger drugs and even with them I have a little D at times just glad things are passing threw and I have no pain now. How are you doing diet wise do you follow any diet?Beat Wishes lol gail

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 9/13/2007 4:57 AM (GMT -7)   
Hi Gail,
No, my GI has not mentioned bigger meds, he said we'll discuss it when needed.  My diet sucks, I love food so much, I can't say no to sweets, and I know sugar is bad for the gut...but I can't help it.
The strange thing is that one day I feel very sick, and the next day I feel I am the healthiest perosn in the world.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2007 7:48 AM (GMT -7)   
Christina it could very well be just your diet causing your one to two day illness. For the most part my gut is okay, but if I eat the wrong thing then I pay for it the next day. I really think you should start a food diary and see which foods upset you and try to avoid them. I really do think your problem is strictly your diet and not really disease related. Good Luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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