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forthcoming visit to GI

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Crohn's Disease
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athensgirl
Regular Member
Joined : Apr 2007
Posts : 254
Posted 9/13/2007 2:40 AM (GMT -7)
I have an appointment to see my GI in one week, and would like your help as to what to ask him.  I'm currently on 9mg Entocort, and 6 pills of Salofalk.  I'm doing OK in general, but I still have my bad D days.  I think that Entocort has not been my miracle drug (I've been on it for 2 months).  I know I have a stricture in my TI, but last time I saw him he told me that surgery was out of the question at least for now, and to tell you the truth I don't feel that sick, although there are 1-2 days every week when I feel nausea, having a little D etc.

I will have blood tests on Monday, because he wants to see them, and my question is should I tell him to give me more "heavy" drugs? Or since life is OK right now, I should just stick with the current ones?  Oh! I forgot, 4 months ago my blood tests were excellent, but I was still experiencing symptoms.  He told me since blood tests are OK, there is no serious inflammation active.  It could be IBS.  Go figure....

Greek hugs,

Christina 

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gogogirl
Regular Member
Joined : Mar 2007
Posts : 69
Posted 9/13/2007 4:19 AM (GMT -7)
I personally would rather be on a maintanence medicine, and get off the entocort. I feel steriods are a last resort, i have been on them numerous times in the past 10 years. The last time i was on enticort for over 6 months and thought it was so much better for me than the old steroids- but it started this blood sugar thing, diabetic swing. I went off and never want to feel crazy like that again. Have a list ready with questions, and ask him what he thinks your options are..
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gachrons
Veteran Member
Joined : Mar 2007
Posts : 4527
Posted 9/13/2007 4:42 AM (GMT -7)
Hi Christina Not sure what you should do has your Dr. mentioned the bigger meds? I know IBS is no fun I had it for 27 years .I am glad your blood work is doing good .The Entocort might be working and improve things for you as you take it longer but I don't know if it will. Hope you get things worked out with your GI .I seen mine yesterday and we are still weaning me from pred. I have to go slow. I take the bigger drugs and even with them I have a little D at times just glad things are passing threw and I have no pain now. How are you doing diet wise do you follow any diet?Beat Wishes lol gail
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athensgirl
Regular Member
Joined : Apr 2007
Posts : 254
Posted 9/13/2007 4:57 AM (GMT -7)
Hi Gail,

No, my GI has not mentioned bigger meds, he said we'll discuss it when needed.  My diet sucks, I love food so much, I can't say no to sweets, and I know sugar is bad for the gut...but I can't help it.

The strange thing is that one day I feel very sick, and the next day I feel I am the healthiest perosn in the world.

Christina

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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 9/13/2007 7:48 AM (GMT -7)
Christina it could very well be just your diet causing your one to two day illness. For the most part my gut is okay, but if I eat the wrong thing then I pay for it the next day. I really think you should start a food diary and see which foods upset you and try to avoid them. I really do think your problem is strictly your diet and not really disease related. Good Luck!
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