So I have been trying to get used to having Crohns since being diagnosed almost a month and a half ago. I too mourn my "old" life but I am trying to just live through it but some days are harder than others and is frustrating. I love this site because I am able to learn so much but I haven't found anything on this subject so I thought I'd ask.
I am getting used to the not eating that much, the eating better so as to not "aggravate" things, the constant dull pain 24/7, but I'm not doing to well on the "general malaise/fatigue/tiredness" factor. I sleep between 10-14 hours a day (3-4 of those hours are for naps after I make myself go out and about
=running errands or to prepare me for my shift at work) and I STILL am tired. It is really frustrating me because I don't know what is causing it and if this too will become a permanent fixture in my new life.
Are you tired too? Is this another part of this lovely disease and if it is, what do you do to gain energy? Do you get your energy back when you are in remission?
I have a friend that has an autoimmune disorder (they haven't named it yet but she's had it for 2 years) and she gave me a B shot and I felt somewhat better so I asked my regular dr in August if I could have B shots. She was on a long term vacation so another doctor replied and said I would have to take a B test to see what my levels were. So I took it and it was 460 out of the range 290-900 something. Which meant NO to the request. I bought sub lingual B tablets anyway and started taking them in addition to my prenatal, probiotic, calcium and magnesium, vitamin C, omega 3, and dietary enzymes hoping I would get the same effect but it doesn't seem to be working like the shot did.
So yesterday after almost a month of trying to wing it, I emailed my GI doc and asked him if I could have it and he said no. Instead, he is going to order a thyroid test to see if my thyroid is the problem. I really REALLY don't feel like hearing about
another body part going out on me, but I also want to be affirmed that I'm not crazy.
I now feel like I am becoming a hypochondriac but the fatigue is so real I don't know what to think anymore.
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds Asacol 3x day