I am about
to begin taking 6mp and am rather nervous about
it. But thinking about
it has brought me to a question..... Before drugs like 6mp, Humria, and remicade, were avaliable, how did you deal with life, symptoms, and long term managment of your disease?
I was diagnosed 13 years ago at age 19. I have been on sulfa, pentasa, entocort, currently on prednisone, just had a resection 3 months ago, and am seemingly doing as badly as I've ever been. i need to get off the pred as i've been on it since feburary now. taking vicodin daily for pain even though it doesn't help me that much and xanax for anxiety that has developed over the years regarding my guts and the impact on my life.
i just wondering what the quality of life was like for those of you before these more powerful (and more dangerous) drugs were out there. i'm also trying to weigh the pros/cons of beginning to take such drugs as i am not sure if the benefits outweigh the risks........especially long term.
as an aside and to counteract any possibility of seeming overly negative, my life otherwise is really great. just got married. spent 2 weeks in hawaii. i have a dream job (music composer) where i work on my own time (not 9 to 5) and from home and am successful. my wife is an RN who cares for me very well. still have health insurance. basically i have everything i could ever want or desire except my health.
so what do you think folks? i'm most curious to hear what your experiences are and have been......
Diagnosed with Crohn's 1994.
Current meds: Pred, Nexium, vicodin. Will be staring 6mp soon.....