Why are my symptoms worse ever since my colonoscopy?

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Ohana
Regular Member


Date Joined Aug 2007
Total Posts : 89
   Posted 9/15/2007 2:57 PM (GMT -6)   
I was diagnosed about 2 months ago and have spent the last 6 months with some burning, slight bloating and small discomforts while exploring everything from GERD to depression as the cause of my symptoms. Almost immediately after my colonoscopy/endoscopy, my symptoms have gotten much worse. Can this be because they were in there with the scope? I mean, if my guts are sensitive could this possibly have made this worse? They took several biopsies as well.
 
Also, I took Prednisone for 6 days (I ended up having reaction to it - couldn't breathe) and got off it. The symptoms took an upward turn after that as well.
 
I know it could just be the disease progressing but really, after so many months with really mild symptoms, it seems so suspicious that my pains and spasms are so much worse now within about 6 weeks.
Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/15/2007 3:18 PM (GMT -6)   
I have heard of people getting perforations due to a colonoscopy but I would thing you would be much more ill if not worse than that since it was that long ago. I would call your GI in the am or go to the ER today if it gets too bad.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2007 5:15 PM (GMT -6)   
Hi Have you talked to your GI about this perhaps the imflamation is causing you more symnptoms or you are upset over your new DX stress can cause flare ups. Not sure what it is but hopefully your GI will be able to help you with that. Best Wishes .lol gail

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/15/2007 6:11 PM (GMT -6)   
I think its coincidence but I DO think uyou should talk to ur GI about ur symptoms...normally if a colon is too inflamed, they wont go past a certain point to avoid perferation and such

GL let us know what happens...sorry im not much help

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/15/2007 10:41 PM (GMT -6)   
3 ot of 4 GI's and one colon and rectom surgeon that I've seen over my 16 yrs have said that sometimes getting scoped can bring on a flare...which is why my colon and rectom surgeon did NOT want me to get scoped while I was 8 months pregnant, as he feared it would make my flare worse and risk putting me into premature labour as well.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/15/2007 10:48 PM (GMT -6)   
I always feel worse after a scope . Think its because of the prep. The clean out is worse than the scope. Watch out for fever, as that may mean something bad is wrong.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


EKP123
New Member


Date Joined May 2018
Total Posts : 3
   Posted 5/16/2018 4:40 PM (GMT -6)   
I had my first colonoscopy in March due to an ache in my lower right abdomen that had lasted for several months. Bladder and ovarian issues were ruled out. I had no other symptoms. (I had a stomach bug in December that my husband also had.) Aside from food allergies (MSG, Pork), I have never had issues with my diet. I am healthy, don't eat fast food, don't eat pre-packaged foods, don't smoke, don't use drugs, and consume very little alcohol (a glass of wine a month at most), and excercise daily. I've never been overweight. Since the colonoscopy, the symptoms have been terrible. The abdominal discomfort has increased, the bathroom trips remind me of food poisoning. I'm exhausted and I've lost 9 pounds. When I asked the GI, he responded that he'd had to take several tissue samples and that could have irritated the already inflamed tissue. MRI and bloodwork confirmed Crohn's and UC. I was concerned that something had happened during the scope... seeing the other posts in this thread have answered some of my questions and I hope that my post helps as well. Have not started treatment - can't do steroids due to a past reaction and waiting for approval from the insurance company to begin infusion therapy.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16408
   Posted 5/16/2018 6:55 PM (GMT -6)   
Hi & welcome to the forum. Your drs comments are spot on. Often when someone has inflammation at the time of the scope the prep itself can really irritate things. What would truly disturb me is this delay in getting treatment. Your scope was in March, I don't know if you live in the states or where, but that type of a delay should not be happening. I would be calling that drs office asking what is going on. I would also obtain copies of the written reports of the scope & the biopsy reports. You are entitled to a copy of them. Has the dr discussed the results of the biopsy report with you?
Susie
Moderator in Chronic Pain & Psoriasis Forums

EKP123
New Member


Date Joined May 2018
Total Posts : 3
   Posted 5/16/2018 7:11 PM (GMT -6)   
I live in the US, in New York. The doctor has provided me with the pathology from the tissue samples and has shown me the results of the colonoscopy, the MRI, Chest X-rays, and the blood work. I can't have the steroid treatment due to past reaction to prednisone. He is recommending infusion therapy and, unfortunately, can't order it until he receives approval from our insurance company. Everything is delayed by the insurance company. (Example - Scope was on March 20th and I couldn't have the MRI until mid-April because of the wait for approval from the insurance company.) I think the doctor would have started the therapy weeks ago if we didn't have to wait for the approval.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16408
   Posted 5/16/2018 8:53 PM (GMT -6)   
Whoever is in charge of getting approvals in his office should be calling your insurance & not waiting for them to drag this out. They provide CPT codes to your insurance company that gives the diagnosis, so I am sure they are aware of your situation.

Since you are new to crohns, I urge you to check out CCFA.org, it is an excellent website that give accurate information about both diseases & various treatments. Do you know what infusion drug the dr is recommending? Many of the meds used to treat offer patient assistance programs that helps with copays with your insurance. Depending on the dr some will tell a patient about this & then some don't. I just wanted to make you aware of this.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

EKP123
New Member


Date Joined May 2018
Total Posts : 3
   Posted 5/17/2018 11:25 AM (GMT -6)   
Thank you, Susie. I appreciate the information. I will certainly check out the CCFA.org site.

My doctor has given me some information on financial support from different organizations as well as the paperwork to apply for assistance through the lab that did the advanced diagnostic testing (my insurance wouldn't cover that at all). The infusion drug he's recommending is Entyvio.
Diagnosed with Crohn's disease and Ulcerative Colitis May 2018
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