just need to talk to people who understand

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Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 9/16/2007 9:40 PM (GMT -7)   
So I have been feeling pretty good. I am taking colazal and prenatal vitamins for the folic acid (1mg) to keep my hair from falling out. My tummy has been getting better and better and the joint pain was getting more and more liveable. I was so excited after months of joint pain I had a really good week. I was even thinking if I can keep feeling good for 6 months maybe we can have another baby (ok, so I got a little excited when I started feeling good --- what was I thinking making plans for 6 months from now anyway?). Then I ate 3 bites of pizza, I ate before we went to our friends house so that I would be good but then couldn't resist. The next day I woke up with that "nothing is really wrong, but I just don't feel right" feeling. Friday the D started again. Now it doesn't seem to matter what I put in my stomach it hurts. Oh, just as bad is the fact that the joint pain is back. Plus I am feeling so fatigued again all the time.
I am suppose to take my colazal 3pills 3x a day. I am really good about remember morning and evening, but have the worst time in the afternoon. I almost always forget. But this didn't seem to be a problem before..... I guess I will start taking it religiously even if I have to tape the afternoon dose to my forehead in the morning so I don't forget --- ok just kidding.... I hope this helps. I was soooo looking forward to a remission. Anyway, just needed to share with others who understand....
Does anyone else start craving carbs when their stomach acts up? I have wanted pizza hut breadsticks so bad for the past few days, and those giant muffins. Good thing I don't have any in the house right now......
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Regular Member

Date Joined Feb 2004
Total Posts : 65
   Posted 9/17/2007 2:17 AM (GMT -7)   
This is the place. My wife sort of understands , but my family ( sort of large) doesn't understand about CD, thats you cannot cure it, I gave them all print out...NO Body really cares unless they have it ! I got mad a my previous GI and the NP , I told them how much pain I was in, they would not give me any pain meds ( my PCP) did ! I ask my prev Doc and NP have you or a loved one had CD , They said NO , I said then how the hell would you know what I am going thru? Hung up and changed GI Docs...Most are in it for the money...GOOD LUCK !

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/17/2007 3:58 AM (GMT -7)   
Hi I know what you mean by forgetting the dinner time meds I do that with my B12 pill and have to stick the bottle where I can see it and even then I clean up and put it back in the cupboard guess where they are now.Maybe they could come up with a crohns bracelet that we could put our daily meds in but then who knows if we"d remember to chack it I sometimes think memory problems go with them. lol Hope you get to feeling better soon. lol gail

Regular Member

Date Joined Jul 2007
Total Posts : 73
   Posted 9/17/2007 5:07 AM (GMT -7)   
I set the alarm on my cell phone to remind me to take my afternoon pills. I was always forgetting, but since I almost always have my phone somewhat close to me, I haven't missed them.
Munchkin 81
26 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
currently taking 9mg Entocort EC and 1200mg Asacol 3xday
Aciphex 20mg 2xday  Iron, B-12, and folic acid

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2007 6:49 AM (GMT -7)   
I take Asacol. I am supposed to take 2 caplets 3 times a day. What I do instead is, take 3 caplets in the a.m. and the other 3 at bedtime. That way I don't forget the afternoon one, like I was doing.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 9/17/2007 8:23 AM (GMT -7)   
Gee, I feel a lot better now! I thought forgetting the eve. meds was just a quirk of mine. I try to leave the meds where I can see them..


Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 9/17/2007 1:38 PM (GMT -7)   
I do the same as Matthew ....MY Shoe box of meds is with me at all times in the house ......yes I did say shoe box ........

I have pizza and I am sick for days and not off toilet ............so it is a no go for me

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Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 9/17/2007 2:01 PM (GMT -7)   

I don't forget to take my prescription pills, but I almost never remember my vitamins.  That's going to have to change, because I just got a call from my Rheumy.  They took about a gallon of blood at my appointment, and one of the tests has come back that I'm vitamin D deficient.  She's calling in a prescription, so now I need to figure out how to work it in around my Cipro. 

At this point I'm taking more that 30 pills a day.  I take them breakfast, lunch, dinner, and bedtime, so the timing is easy to remember.  I have a notebook that sits on the table with all my pills, and I wrote down which pills and how many for each pill popping session.  I don't really have to look at it anymore, but it makes me feel more secure to glance over it.  For a while it was really stressing me out, trying to keep it all straight in my head.

I have a hydrocortisone suppository I'm supposed to use to help heal the incisions from my surgery, but I forget that one all the time.  Obviously, it doesn't sit on the table with the rest of my meds!  It's not painful, exactly, but it's more of a hassle than popping a pill, and I think I just choose to forget.  If that makes sense.  I hope I'm never prescribed anything that I have to inject myself, because I know right now that I won't do it.  I can deal if someone has to poke me- I don't like it but I can put on my big girl panties and let them do it.  But I don't think I could make myself do it.  I guess time will tell.

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 9/17/2007 9:27 PM (GMT -7)   
Thanks for all the responses. I am going to try and take the pills twice a day. Take 5 in the morning and 4 at night.... I hope that this works. I will call the pharmacy in the morning and make sure. Today was scary, I woke up and felt sooo tired. It was like when I first got sick. I could push through the morning, but I had to take a nap.... It just can be scary because last time when I felt like that I got worse and ended up sleeping for 16-20 hours a day and not being able to function at all. I am hoping today was just a bad day and tomorrow will be better. I took it easy today and didn't push myself too hard --- not an easy feat with two young kids, but I did my best and I felt better after nap time.
Thanks again,
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

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