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I really don't understand crohn's!!!!

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Crohn's Disease
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Posted 9/18/2007 8:14 AM (GMT -7)
ok here goes

I started to go on boost on friday,saturday and sunday morning....we were having a barbeque on sunday afternon so I said to myself ....well obviously the pain is a bit better BUT still in pain so I decided to eat everything I mean everything....so after a couple of hours I was a bit in pain but very very bearable...I was a bit in pain cuz I needed to go to the bathroom.....anyway yesterday ( monday ) I have no pain and it was a miracle that I have no pain b4 going to the bathroom....I DON"T GET THIS....

I Really don't understand I am so so frustrated...that I can eat something and doesn't bother me and then on another day it will

does that happens to u guys?

 

Posted 9/18/2007 8:21 AM (GMT -7)
Yeah that happens to me everytime I eat spaghetti. I can eat it one night for dinner with no problems, then take some leftovers for lunch the next day and get sick. Go figure!!! Isn't life with Crohns grand. Seems as if you can't win for losing with this disease.
Posted 9/18/2007 8:50 AM (GMT -7)
If it makes you feel any better -- I was dx 25 years ago and STILL don't understand CD. I can normally eat red meat with no problem, but on Sunday I had a big ole Delmonico steak and I've had a belly ache ever since. But it was worth it!
Posted 9/18/2007 2:02 PM (GMT -7)
I understand Crohn's in this way "Expect the Unexpected", it pretty much sums up this disease.!
Tess
Posted 9/18/2007 5:13 PM (GMT -7)

      redface One more reason to keep an updated food diary!

           Matthew

Posted 9/23/2007 9:39 AM (GMT -7)
hi matthew i dont understand crohns either lol i can eat one thing one minute feel fine next im in hospital lol i can eat a pork chop feel fine then be in bed for weeks grrrrrr lol this disease is so unpredictable i went shopping to asda (WALLMART)AND ended up being wheeled out on a stretcher i never even got my chicken lol.you can either laugh or scream lol.
what i really miss is currys oh how i miss a vindalooooooooooooooo (haha)i think i need sectioned this disease drives me nuts i cant understand why you have surgery to remove the diseased part then a few months it re-occurs i could write a book on what ifs why this and that!!!!!!!!!!!!!there is no explanation as to why this disease occurs whether its the foods we eat or whether its something to do with your immune system if there was a choice given to swallow the worm i would have no hesitation i would swallow it im so tired of meds and injections
Posted 9/23/2007 1:01 PM (GMT -7)
If I understood it, maybe I could find a cure. Alas, I'm just like the rest of you. My illness follows certain patterns for years & then just changes. What the heck???

Matthew
Posted 9/23/2007 4:54 PM (GMT -7)
I had pain from eating a hamburger recently and ended up in the hospital with a severe flare. Sometimes it doesnt matter what I have eaten. I practically was trying to starve myself because drinking just liquid was painful. I ended up on IV steroids, antibiotics, bowel rest etc and it worked after 9 days. I hadnt had any major attacks or minor ones in about 2 years.
Posted 9/24/2007 4:51 AM (GMT -7)
thank you guys for your response....I feel too that it doesn't matter what I eat...if I am going to be in pain I will be in pain

thanks

Posted 9/24/2007 2:51 PM (GMT 0)
I am now to the point that I do not eat anything that does not taste good. I figure if it is going to hurt By God it better taste good. I have a problem with things that have too many preservatives in it.
Posted 9/24/2007 11:14 AM (GMT -7)
Hey, well I'm the one Crohnie here that can usually get by on fast food. But if I eat at BurgerKing, God help me! The makers of Immodium get a major profit out of it.

Matthew
Posted 9/24/2007 2:24 PM (GMT -7)
This happens to me a lot!!
The other night I went with my bf and his mum to Hooters (it's a family restaurant, dontcha know!) and I had grilled cheese, fries, and fried pickles knowing I was going to die from it but doing it anyway. Lo and behold, no pain, no issues, NOTHING, not even gas. I couldn't believe it.

I don't think I'll ever understand what's going on with this disease!
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