I found books at the library and read all I could in print and on-line. I had never heard of crohns and luckily found HW that very day. when you go to the doc, take a list of questions and if you are nervous, take someone with you to help. follow your gut and if you don't feel taken care of, think about switching. specialists are so different from primary docs, but this is a big deal, so you should have your questions answered. you might even call ahead and make sure the appt is for enough time after a new dx.
again, just remember that most of us have initial confusion with meds and tests. so don't expect to be fine overnight. they might send you for more tests.
it is ok to feel helpless; this is a big deal and we all know that!
48 y/o woman. Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.