New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2007
Total Posts : 6
   Posted 9/20/2007 1:56 PM (GMT -7)   
Hi, new to this site. My son has Crohn's and his father found the Aloeelite product online. When we asked the Doctor about it, he seemed less then thrilled with the product and it's unknowns. Has anyone had any experience with this? We are divorced and he (the ex) is making a big stink about going all natural. My son is 18 and can make his own decisions but he looks to me for guidance. His disease is rather advanced as 18cm of his small intestine his ilium and colon and rectum are seriously ulcerated. The Doctor wants to try Imuron.  Any input would be helpful.

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 9/20/2007 4:30 PM (GMT -7)   
welcome to HW. I have never done any natural remedies. I have been on asulfadine, imuran, prednisone, asacol, pentasa, entocort, remicade, and will be starting humira soon. I am currently on entocort and pentasa. I had 3 surgeries this year and the hope was the pentasa would keep the CD at bay for a while. I am 3 months post op from my temp ileostomy reversal and I have a lovely fistula on my belly that farts and poos. I was diangosed 20 yrs ago when I was 8. I had 20 yrs with no surgeries and meds kept me in check til my ileum perforated in February this yr. Some other people on this site may have used a more natural approach I hope that they can give you some info on that product or maybe some other things that may have helped them.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/20/2007 5:10 PM (GMT -7)   
Hi I am glad your here and welcome. Your son is young and from what you are saying in need of meds that will help stop this inflamation .I know from abcess and fistula's and blockage that this disease is not to be ignored.I am on pred., Imuran, and Remicade. These drugs are for moderate to severe CD. I can not tell you what to do but I want to keep my Cd controlled so that I don't loose what I have .There are many that probably wish those meds were there for them which might have lessened there surgeries and CD complications. You need to read up on the complications of CD. Reading from what you said it sounds like he already has alot of areas that are inflamed. What meds is he on now? I feel his GI is probably telling him that his CD is in need of better meds then what he is on I would not ignore what he is saying in hopes that other things will help. Let us know how it goes. lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/20/2007 5:48 PM (GMT -7)   
Hi and Welcome, I never done any natural remedies. Sorry to here your son has crohn's.
This is a good site to ask questions about anything to dealing with crohn's.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

New Member

Date Joined Sep 2007
Total Posts : 6
   Posted 9/21/2007 5:12 AM (GMT -7)   
So obviously he needs the medicine. What has been your experience with Imuran, did anybody have bad side effects? What are the pros and cons as the crohn's patient?

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/21/2007 5:24 AM (GMT -7)   
Hi I have not had any sideeffects from it and take Remicade with it .My CD was severe. I do not have pains now am able to eat I do follow a low roughage diet. The Dr. will put him on a doseage and will monitor him to see how he is doing sometimes they will up the dose or lower it. Please let us know how things are going with him .lol gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/21/2007 6:28 AM (GMT -7)   
Yes he definetly needs medicine. I know alot of people tried the Aloe stuff and most said the taste was so vile that they couldn't drink it, and quite honestly I can't remember anyone who said it helped. I know when I am feeling bad, if something tastes bad, you can be assured that I won't touch it. Some folks have some side effects with the Imuran, but they are usually mild. Usual stuff is nausea and fatigue. Most folks take it at bedtime to avoid any side effects because they sleep thru them. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

New Member

Date Joined Sep 2007
Total Posts : 6
   Posted 9/21/2007 8:41 AM (GMT -7)   
Thanks Nanners and gachrons for the info. I am going to see him at College this weekend. I will try to get him hooked up with this site so he can talk to everyone himself. Do you guys do any supplements at all? If so what works for you.

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 9/21/2007 9:03 AM (GMT -7)   
Hi Momhunneyman, welcome! You may want to make a separate post of your question about supplements. There are a lot of folks here who do use them. I believe they've made a significant difference for my son. Many of the more progressive GIs are also in favor of them. Our GI made the comment that he believes somewhere around 60% of his Crohn's patients take supplements (though he won't make any recommendations on what to take). Many also feel proper diet plays a huge roll (SCD, Elemental, The Maker's Diet, etc.). There are lots of good books and web sites with great information.

I would definitely follow your GI's recommendations on the medicine, though. I feel for your son being in college and having to deal with all this.

My son's list of supplements is below. Feel free to email me if you have any other questions! Good luck!


Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.
Just starting the Maker's Diet.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 9/21/2007 10:29 AM (GMT -7)   
I can't find it through search right now, but not long ago someone posted a study showing how aloe did not help CD. For me, peer reviewed studies say it all.
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 9/21/2007 5:33 PM (GMT -7)   
i feel obligated to give my 2 cents. well, with me it is generally 2 cents and some extra change so bear with me and i'll do my best to spare you a rant. i say go organic. what have you go to lose? look at the money you spend on medicines and who knows if they work or not? all you know for certain is that you are getting side effects from putting something foreign in your body. docs are paid to write prescriptions - it is how they make the bulk of their money. i've been on just about all the meds out there and who knows what worked. i felt most didnt, but i took them cos i didnt know what else to do and was told to by my doc. i took remicade almost as soon as it was on the market. sure i felt better on it, but 6 years later i developed a fistula from my colon to my bladder and lost 8 inches of my sigmoid colon. now if i am feeling a lot better, how does my colon get worse and the disease spread and then i develop a fistula which this medicine is primarily supposed to help against? means it never helped the disease, just masked the symptoms. and that is what medicines do - mask the symptoms so you can hopefully function. going organic/natural/etc gave me my life back and i cant implore enough people to try it.

like medicine/drugs, we are all different and respond to them differently. the same with goes with organics. what works for some may not work for others. but i think hands down what will work, to varying degrees of course, but most of it depending on your dedication and discipline, is diet. i believe that alone saved me from ostomy surgery. i hope that at least what i've said here will make you research this a bit and think about organics/natural cures with a more open mind. there is definitely something to this - i am living proof. it is how we healed ourselves for thousands of years. it is only recently in human history that we shun it, which imho, is why we as a society are also so sick nowadays. but like i said, check it out for yourself. and just think what can happen if it works!!! start off slow having your son change his dietary habits and become educated on nutrition. then look into supplementation (that can be even more intimidating).

check out that is a good place to start.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon

Regular Member

Date Joined Sep 2007
Total Posts : 182
   Posted 9/29/2007 10:08 PM (GMT -7)   
Yes natural is good! I have tried just about everything both Natural and Not Natural. Unfort. most of us with Crohn's (espec. moderate to severe) need to use both remedies, both natural and not natural. I have had Crohn's for 6 years and have been very sick and in and out of hospital, bleeding and everything else. For the first time in 6 years since I was diagnosed, I am about 70% better and on HUMIRA. Great drugs. The doctors are keeping close track of me as well. I believe that a HUGE part of Crohn's and care is having a good Dr. Without a good doctor you will be lost in the world of Crohn's. Get a couple of opinions (at least 2) and work with the doctors.
Let me know if you ever need any help with anything as I will be more than happy to help out!

Regular Member

Date Joined Sep 2007
Total Posts : 330
   Posted 9/30/2007 3:19 AM (GMT -7)   
I think it's great to research and explore alternate remedies that will work in conjunction with your medicines and your doctor. To me, it's not as much of an "either/or" question.

I am still in a flare and can't eat much yet, but I do think I might investigate drinkable aloe. I have a friend that sells Market America products (I take something called OPC-3, which is a liquid antioxidant supplement) and she's been trying to get me to try aloe (which I never knew you could drink until I got sick) ever since I got my Dx. She's sent me many testimonials from people who had good results. I admit that I'm skeptical, but when my flare is a little more under control I'll give it a try. I don't have a link to the testimonials, but if I can get one, I'll post it here. (Of course, you know there are testimonials for just about everything on the internet, so always read this stuff with a careful eye.)

Another member here, pb4 has suggested bee propolis -- something else to look into.
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone, Prilosec and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!

Regular Member

Date Joined Sep 2007
Total Posts : 33
   Posted 9/30/2007 5:03 PM (GMT -7)   
A chiropractor I went to recommend George's Alow Vera. it tastes almost like water. Some of the other stuff is pretty vile. L-Glutamine also has anecdotal evidence of being good for the intestinal lining, but I never remember to take it.

So if anyone has suggestions on how to get out of your own way and remember to take all this stuff, let's hear it!


48 yr old female, dx CD 12/04, no surgery yet, on a whole bunch of meds and looking at options :-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 10:46 PM (GMT -7)
There are a total of 2,904,671 posts in 318,781 threads.
View Active Threads

Who's Online
This forum has 158158 registered members. Please welcome our newest member, Mrblonde369.
258 Guest(s), 2 Registered Member(s) are currently online.  Details
Girlie, OptimisTick