Pancreantitus Stops me From Being Able to Have Immuran

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Date Joined Mar 2006
Total Posts : 34
   Posted 9/20/2007 5:50 PM (GMT -7)   
I developed pancreatitis about 6 weeks after starting Immuran.  I had abdominal pain in the mid-abdomen. It hurt to breathe or any movement of my abdominal wall. Fortunately my doctor checked my enzymes right away, realized it was early pancreatitis, and I felt better several days after. But it was a bummer not to be able to take Immuran.
** added title to your thread so more will respond you can change it yourself if this is not what you want
Take care .....LYN

Post Edited By Moderator (Howlyncat) : 9/22/2007 11:45:41 AM (GMT-6)

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Date Joined Nov 2003
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   Posted 9/20/2007 9:56 PM (GMT -7)   
Wow, what a bummer. I'm sorry that you had such a bad reaction. I recall a couple others here having had the same thing happen. I hope the GI can get a plan together to get your CD under control.
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Date Joined Mar 2006
Total Posts : 34
   Posted 9/21/2007 3:14 PM (GMT -7)   

Ooops- I just realized this post should be under the thread re reactions to Immuran.  Can it be moved.


To answer your question Ides, I did well without Immuran for about 5 years, stayed in remission with Pentasa and Levaquin.  Had to go off Flagyl, I had a raection to that too. . For about a year and a half I've flared on and off. Have been in remission again for about 6 months, I think thanks to naltrexone and gluten free diet (or maybe it's placebo effect, I don't care so long as it works).   The next step for me wil be Remicade, but that scares me for 2 reasons- I'm not on an immunomodulator, and I have a TI stricture.  So I'm trying to hold off because after Remicade, and maybe Humira, that leave's surgery. And I'm PETRIFIED of surgery.

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Date Joined Aug 2004
Total Posts : 245
   Posted 9/21/2007 6:57 PM (GMT -7)   
I was petrified of surgery too, and I just had it. It was due to an obstruction in the TI where my stricture was. I had put it off, but eventually had no choice. I'm so glad I did, I feel great. The scar is ugly, but I'm back at work 2 weeks later (easy job) and I had very managable pain after surgery. The best part is not fearing an obstruction every time I eat. I'm so happy it's over. I'm not sure what you specific fears are, but I hope this helps a bit.
Live, Laugh, and Love!!

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Date Joined Sep 2007
Total Posts : 16
   Posted 9/21/2007 8:33 PM (GMT -7)   
I was terrified of surgery too. After my CT scan they decided that I was getting worse instead of better even with meds and so decided to do surgery the next day, so at least I didn't have to anticipate it long. It was scary, but I am SO glad I did it. The surgeon said that I was so messed up he didn't know how I was functioning, plus he said there was no medicine that would have cured it. I had 12 inches of my TI removed, plus about 3 fistulas repaired, a uterine suspension (to keep it out of the way of scarring), my bladder had to be patched up from a fistula, and I had many abscesses to be removed. So there was a lot to be done, but I made it! Plus, while 7 weeks later I am still much more tired and run down than usual, at least my crohn's is gone for now... To make a long story short, surgery is worth it.
20 yr old female, diagnosed with Crohn's May 2007, but by the looks of it, probably had it for many many years.  Surgery for bowel resection, fistula repair, and abscess removal in July 2007.  Currently on 150 mg. Imuran, probably starting Humira instead.  Have taken: Ciprofloxacin, Metronidazole, Prednisone, Zofran, Ambien, Imodium

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Date Joined Jan 2005
Total Posts : 24909
   Posted 9/22/2007 10:51 AM (GMT -7)   
Did you still want thread moved ...that you can do as well copy and then go to the Immuran thread and paste the post there...........
Just a thought or it can be done from one of us

Sorry about this happening to you
As Ides posted I too heard a few ppl had this same thing happen

Be well

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